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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Blog entries by Stukindawski

Stukindawski
Stukindawski
On The Latest GET Trial
Stukindawski
5 min read
Views
386
Reaction score
3
User Blogs
Could A Lack Of Extensive And Unbiased ME/CFS Education And Research Place Limitations On The Ability Of Ethical Reviewers To Raise Appropriate Concerns? For many ME/CFS patients, advocates and medical professionals alike, the latest Graded Exercise Therapy trial will project a feeling of deja...
Stukindawski
Stukindawski
A Black Hole For Great Advocacy
Stukindawski
3 min read
Views
310
User Blogs
Following the release of the Lipkin study on XMRV we have witnessed a common distortion of facts about ME/CFS in the media. On this occasion, many publications took the news about 2 viral strains and translated it to mean 'every virus'. Inevitably such misinformation provided a bedrock for some...