Blog entries by Seven7

I had the TTT today. I went no food or drink after 12am. It was very simple, the bed was like a table. I lay there while they conected the heart...
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900
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Sooo I went to see electro, basically he told me to push thorough it and exercise for POTs, I am also getting a TTT but he said that he didn't...
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309
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2
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As some were worried about, I did crash with exercising. I have been kind of crashed for a few days but not too bad, just incapable of producing...
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315
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Sooo I was symptom free pretty much at rest so I decided to add exercise again :confused: . First day was Good, I did 20 min of easy stationary...
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597
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I have more stamina overall, I have been doing more with family on weekends but I get this small crashes too. I am wondering if I am really...
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366
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Sooo I have had great days! I am resting during the week and having close to normal life on weekends, I am running around and trying to...
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841
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7
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I had a big crisis again about 2 nights ago, the burning in head was so hard I was crying and ready to curse the day I was born. I prayed, haven't...
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400
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It has been some interesting days. Doing better in a way, I am finally feeling some progress. I was Banned from taking b12 from Dr because My...
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602
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6
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OMG! I had a sleep study with CPAP and I just had the best day in a long time!!! When I have these days I just get a glimpse of how life can be...
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658
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I have been wanting to explain the general terms for the "normal" and newbies people. Brain fog, we all experience it differently, but I will...
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563
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Update: I had the most wonderful day yesterday. I could go out with my family for a walk in the woods (I would lay down every 5 min) So I can...
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608
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Thank you all for the kind encouragement and for reading my blog. When you all let me know I am not the only one struggling with these things, it...
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536
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So mentally my situation is the following: I was raised that pain is personal and when you are sick you suck it up and keep going. So, that did...
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658
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So I stopped blogging because I figure the Blog is public. What a dilemma. These are very embarrassing thoughts and personal feelings, I don't...
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451
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So today I woke up better, didn't sleep well again but for some reason I felt better. I put ice first thing in the morning on my head. Ha! those...
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894
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8
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So I had another horrible night of sleep. I was miserable when I woke up and had that burning again. I put ice and felt better. Got out of bed...
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535
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4
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So today was... How to even describe it, I have been in all the sides of the spectrum of the mood scale. For starters, I didn't sleep, not sure...
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528
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4
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This whole disability business is more challenging than expected. That your world comes to a stand still, doesn't mean it stops for everybody...
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498
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