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Blog entries by Seven7
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Imunovir Users PLEASE READ - UPDATE ON PROTOCOL --- LDN Info also
Seven7
May 22, 2014
User Blogs
So apparently I am not suppose to pulse the imunovir anymore. Except for the every 6 months break. She told me to use 3 pills a day all week (do...
Views
377
Comments
9
Updated
May 22, 2014
Electrolyte should have sugar - CFS Dr said
Seven7
May 22, 2014
User Blogs
So I always wonder why when I buy the expensive electrolyte Pedialyte I do so much better, I do not crash and I have better overall performance...
Views
337
Comments
7
Updated
May 22, 2014
Imunovir break 5-16-2014
Seven7
May 22, 2014
User Blogs
Imunovir break 5-16-2014
Views
154
Updated
May 22, 2014
The hand like a faucet episode ---- Lymph pain
Seven7
Apr 11, 2014
User Blogs
This is some crappy decease when you are doing well or you get used to the symptoms you have, something else pops up and you have to start all...
Views
186
Comments
1
Updated
Apr 11, 2014
Vit D = Muscle pain and riniging in brain.
Seven7
Apr 4, 2014
User Blogs
Note to self, do not use Vit D. Sooo I have been struggling with muscle pain for a while. As soon as I stopped Vit D the pain stopped, I had...
Views
222
Comments
3
Updated
Apr 4, 2014
Memory Loss (blackouts)— literally can’t remember some periods of time
Seven7
Mar 20, 2014
User Blogs
Quote from the IACFS conference point in this matter. I am soooo relieved somebody brought this up (specially an experienced Doctor) and I am...
Views
350
Comments
6
Updated
Mar 20, 2014
I miss her - Mourning
Seven7
Mar 1, 2014
User Blogs
She was so care free. The world her playground, the sky just there to be reached. There were no limits to her insatiable curiosity for life...
Views
371
Comments
9
Updated
Mar 1, 2014
Mini Crash with No symptoms?!?!?
Seven7
Feb 16, 2014
User Blogs
So After my crazy ski trip, I finally crashed about Wednesday. Which I expected something to happen. The weird thing for me is that I did not...
Views
200
Comments
3
Updated
Feb 16, 2014
I went Skiing yesterday - Whaaaaaaaaaat
Seven7
Feb 9, 2014
User Blogs
This is so funny, My husband yesterday said "Deconditioning theory is the biggest bunch of crap! " He was like insulted, "can you believe that...
Views
190
Comments
2
Updated
Feb 9, 2014
I have my life back Week 4 - OI Crash in Electro Office (Run out of med)
Seven7
Jan 11, 2014
User Blogs
So I have been doing great. I finally got to see the electrophysiologist again. I feel so frustrated because I have asked him to increase...
Views
174
Comments
2
Updated
Jan 11, 2014
Back on LDN, Pain almost gone
Seven7
Jan 5, 2014
User Blogs
What was that??!!?!?!?! I really would love to figure it out what is causing pain like that. I have not made 2 miles walk in a few days so not...
Views
188
Comments
3
Updated
Jan 5, 2014
Intolerable pain - Stopped LDN week1
Seven7
Jan 3, 2014
User Blogs
So I have energy alright but the pain has become intolerable, Usually when I get this kind of pain is because I am having an immune reaction or...
Views
165
Comments
2
Updated
Jan 3, 2014
Unsustanable energy
Seven7
Jan 1, 2014
User Blogs
So my test has been going well. I have been EXTREMELY Active, I do not feel fatigue anymore (CFS like) I do get tired but not that deep bone I am...
Views
221
Comments
3
Updated
Jan 1, 2014
midodrine 10mg per day (day 4)
Seven7
Dec 28, 2013
User Blogs
I went skating!! I have been pushing my limits and I know I need to account for ME so I don't relapse, but I always like to do this to see what is...
Views
315
Comments
6
Updated
Dec 28, 2013
CFS Jackpot - Midorine incresed dose
Seven7
Dec 26, 2013
User Blogs
Ok so I had a friend doctor asked me why I was still so symptomatic with OI when the recommended doses of midodrine is 10mg 3/day and they have me...
Views
198
Comments
2
Updated
Dec 26, 2013
I don't understand CFS
Seven7
Nov 29, 2013
User Blogs
I really don't understand this CFS, every time I think I am ok and accept where I am, It turns on me, rules change, limits are different and is a...
Views
205
Comments
3
Updated
Nov 29, 2013
The going is getting tough - Imunovir week 3
Seven7
Nov 25, 2013
User Blogs
So since I stopped the allergy foods I am doing worse than ever. I relied a lot on carbs for fast energy. Now I don't even have that. I had a...
Views
280
Comments
5
Updated
Nov 25, 2013
Food Allergy last thing I would ever thought
Seven7
Nov 8, 2013
User Blogs
So the last thing that I ever thought about was having food allergies. The only clue was I felt better when I didn't eat and something I thought...
Views
300
Comments
5
Updated
Nov 8, 2013
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