Blog entries by Seven7

So apparently I am not suppose to pulse the imunovir anymore. Except for the every 6 months break. She told me to use 3 pills a day all week (do...
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377
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9
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So I always wonder why when I buy the expensive electrolyte Pedialyte I do so much better, I do not crash and I have better overall performance...
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337
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7
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154
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This is some crappy decease when you are doing well or you get used to the symptoms you have, something else pops up and you have to start all...
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186
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Note to self, do not use Vit D. Sooo I have been struggling with muscle pain for a while. As soon as I stopped Vit D the pain stopped, I had...
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222
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3
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Quote from the IACFS conference point in this matter. I am soooo relieved somebody brought this up (specially an experienced Doctor) and I am...
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350
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6
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She was so care free. The world her playground, the sky just there to be reached. There were no limits to her insatiable curiosity for life...
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371
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9
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So After my crazy ski trip, I finally crashed about Wednesday. Which I expected something to happen. The weird thing for me is that I did not...
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200
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3
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This is so funny, My husband yesterday said "Deconditioning theory is the biggest bunch of crap! " He was like insulted, "can you believe that...
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190
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So I have been doing great. I finally got to see the electrophysiologist again. I feel so frustrated because I have asked him to increase...
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174
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What was that??!!?!?!?! I really would love to figure it out what is causing pain like that. I have not made 2 miles walk in a few days so not...
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188
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3
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So I have energy alright but the pain has become intolerable, Usually when I get this kind of pain is because I am having an immune reaction or...
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165
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2
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So my test has been going well. I have been EXTREMELY Active, I do not feel fatigue anymore (CFS like) I do get tired but not that deep bone I am...
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221
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I went skating!! I have been pushing my limits and I know I need to account for ME so I don't relapse, but I always like to do this to see what is...
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315
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6
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Ok so I had a friend doctor asked me why I was still so symptomatic with OI when the recommended doses of midodrine is 10mg 3/day and they have me...
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198
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I really don't understand this CFS, every time I think I am ok and accept where I am, It turns on me, rules change, limits are different and is a...
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205
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3
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So since I stopped the allergy foods I am doing worse than ever. I relied a lot on carbs for fast energy. Now I don't even have that. I had a...
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280
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5
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So the last thing that I ever thought about was having food allergies. The only clue was I felt better when I didn't eat and something I thought...
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300
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