Blog entries by PracticingAcceptance
Introduction to me
- ME/CFS since 2016. Mostly housebound. Varied btwn moderate to severe to moderate-severe.
- Designer, entrepreneur...
I've just had an unusually low moment. It's December and my second job to looking after my health is making christmas gifts. Nothing extravagant...
My liver AST (I think it's called) was 74 last month, now it's 88. It should be under 40. I don't really know what that means or if it's a serious...
So I've just had my last physiotherapy appointment. I've had 6 appointments over the last 9 months (which is a pace that worked).
I started...
How, where, when
- Dr Bansal is working at St Anthony's hospital in Surrey. It's private. You have to ring up Spires Healthcare for an appointment...
Being moderately-severely ill with ME/CFS, I can leave the house once or twice a week, and see a friend once every couple of weeks, without...
1. Go to a gig (end Feb 2019). I think the last time I went to a gig was July 2017. It was a huge gig in a stadium - not talking about a small pub...
stories of ableism
Some days, you will deal with things badly. You are exhausted, tearful, in pain, anxious. You can barely make it down the stairs, and you can...
"Is this stuff for you?"
"Yes, it's for me."
"But there's nothing wrong with you. You look fine."
"That's why it's called invisible illness. I...
I realise that I am used to staying at home now. I don't desire so much to leave the house. I've adjusted to not going out every day. My...
Written from the perspective of me now, to me 18 months ago
There are sports bottles with straws which mean you don't have to put up with...
Planning further ahead and freezing food.
To notice when my body says no.
To know the difference between a warning 'no you will pay for this' and...
One of the effects of being mostly homebound is that I have fewer adventures. Adventures were a big part of my life. I miss them.
So I'm...
Just been having a look online to see what other people have in their freezer to get ideas, but I can't find anything. (Probably not looking hard...
Getting past my fear of resting
Earlier on in my illness, I felt a fear of resting, and of falling asleep. I was afraid that if I rested, or fell...
From @Learner1 's markers
Total hours of sleep in 24 hours - 9
Number/hours of naps per day - 2.5-5hrs non-sleep meditative rests. Occasionally...