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Blog entries by PracticingAcceptance
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Overwhelmed at December + ESA form
PracticingAcceptance
Dec 5, 2019
User Blogs
I've just had an unusually low moment. It's December and my second job to looking after my health is making christmas gifts. Nothing extravagant...
Views
629
Comments
10
Updated
Dec 5, 2019
Liver update
PracticingAcceptance
Nov 8, 2019
User Blogs
My liver AST (I think it's called) was 74 last month, now it's 88. It should be under 40. I don't really know what that means or if it's a serious...
Views
512
Comments
4
Updated
Nov 8, 2019
Finishing physiotherapy
PracticingAcceptance
Jul 8, 2019
User Blogs
So I've just had my last physiotherapy appointment. I've had 6 appointments over the last 9 months (which is a pace that worked). I started...
Views
749
Comments
3
Updated
Jul 8, 2019
Initial appointment with Dr Bansal
PracticingAcceptance
Jun 10, 2019
User Blogs
How, where, when - Dr Bansal is working at St Anthony's hospital in Surrey. It's private. You have to ring up Spires Healthcare for an appointment...
Views
2K
Comments
16
Updated
Jun 10, 2019
How ME/CFS currently affects my life
PracticingAcceptance
Mar 16, 2019
User Blogs
Being moderately-severely ill with ME/CFS, I can leave the house once or twice a week, and see a friend once every couple of weeks, without...
Views
772
Comments
3
Updated
Mar 16, 2019
Things I have done recently that I would not have been able to do before
PracticingAcceptance
Mar 8, 2019
User Blogs
1. Go to a gig (end Feb 2019). I think the last time I went to a gig was July 2017. It was a huge gig in a stadium - not talking about a small pub...
Views
853
Comments
8
Updated
Mar 8, 2019
Instances of ableism when out & about with my rollator
PracticingAcceptance
Feb 23, 2019
User Blogs
stories of ableism
Views
521
Updated
Feb 23, 2019
To Lior-on-a-bad-day
PracticingAcceptance
Feb 1, 2019
User Blogs
Some days, you will deal with things badly. You are exhausted, tearful, in pain, anxious. You can barely make it down the stairs, and you can...
Views
684
Comments
3
Updated
Feb 1, 2019
Disability equipment delivery man is casually ableist
PracticingAcceptance
Dec 10, 2018
User Blogs
"Is this stuff for you?" "Yes, it's for me." "But there's nothing wrong with you. You look fine." "That's why it's called invisible illness. I...
Views
594
Comments
5
Updated
Dec 10, 2018
It gets easier
PracticingAcceptance
Nov 29, 2018
User Blogs
I realise that I am used to staying at home now. I don't desire so much to leave the house. I've adjusted to not going out every day. My...
Views
437
Comments
3
Updated
Nov 29, 2018
Things that I wish I knew about before
PracticingAcceptance
Nov 16, 2018
User Blogs
Written from the perspective of me now, to me 18 months ago There are sports bottles with straws which mean you don't have to put up with...
Views
323
Comments
1
Updated
Nov 16, 2018
New skills I have learnt
PracticingAcceptance
Oct 13, 2018
User Blogs
Planning further ahead and freezing food. To notice when my body says no. To know the difference between a warning 'no you will pay for this' and...
Views
296
Updated
Oct 13, 2018
Adventures to have when you're stuck at home
PracticingAcceptance
Oct 8, 2018
User Blogs
One of the effects of being mostly homebound is that I have fewer adventures. Adventures were a big part of my life. I miss them. So I'm...
Views
511
Comments
5
Updated
Oct 8, 2018
What's in my freezer
PracticingAcceptance
Oct 7, 2018
User Blogs
Just been having a look online to see what other people have in their freezer to get ideas, but I can't find anything. (Probably not looking hard...
Views
332
Comments
2
Updated
Oct 7, 2018
On resting and getting past the initial fear of resting
PracticingAcceptance
Aug 30, 2018
User Blogs
Getting past my fear of resting Earlier on in my illness, I felt a fear of resting, and of falling asleep. I was afraid that if I rested, or fell...
Views
332
Comments
2
Updated
Aug 30, 2018
Scoring myself on some ME markers
PracticingAcceptance
Aug 16, 2018
User Blogs
From @Learner1 's markers Total hours of sleep in 24 hours - 9 Number/hours of naps per day - 2.5-5hrs non-sleep meditative rests. Occasionally...
Views
263
Updated
Aug 16, 2018
Tried to work - it just didn't work.
PracticingAcceptance
Apr 7, 2018
User Blogs
I tried to Skype with my team during a session they were having, and I couldn't really contribute, and now I feel not useful, and I really miss...
Views
330
Comments
2
Updated
Apr 7, 2018
The nurse today said:
PracticingAcceptance
Feb 23, 2018
User Blogs
- no AV after dinner - phase out drinking as much water - half a cup less to start with - drinking too much water may be habitual. - though my...
Views
395
Comments
4
Updated
Feb 23, 2018
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