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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Blog entries by markii
It's been 8.5 -9.5 months since I first had issues. I've been holding steady the past 4-5 months. I'd say my main concerns were:
1: HR issues / still on beta blocker - minimal amount / 17.5mg metropolol ( 270 pound guy) but can't quite get off of metropolol as I'd not feel well / HR would...
Ways I am doing better:
Body aches less overall. I have some really good days where I don't notice much. Contrast that to where it felt driving to work was hard because my leg would ache from keeping it on the accelerator.
HR better overall. I try to take 1/4 ( 12.5 mg) metropolol a day...
Still progressing through Dr appointments. Some more tests from primary Dr being done, but a referral to Rheumatologist is likely coming. I am here at PR because a few key symptoms : exercise intolerance ( plus simple things seem hard, steps), regular muscle aches from minimal activity, hr...