Blog entries by lior

So I've just had my last physiotherapy appointment. I've had 6 appointments over the last 9 months (which is a pace that worked). I started...
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How, where, when - Dr Bansal is working at St Anthony's hospital in Surrey. It's private. You have to ring up Spires Healthcare for an appointment...
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Being moderately-severely ill with ME/CFS, I can leave the house once or twice a week, and see a friend once every couple of weeks, without...
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1. Go to a gig (end Feb 2019). I think the last time I went to a gig was July 2017. It was a huge gig in a stadium - not talking about a small pub...
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Some days, you will deal with things badly. You are exhausted, tearful, in pain, anxious. You can barely make it down the stairs, and you can...
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"Is this stuff for you?" "Yes, it's for me." "But there's nothing wrong with you. You look fine." "That's why it's called invisible illness. I...
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I realise that I am used to staying at home now. I don't desire so much to leave the house. I've adjusted to not going out every day. My...
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Written from the perspective of me now, to me 18 months ago There are sports bottles with straws which mean you don't have to put up with...
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Planning further ahead and freezing food. To notice when my body says no. To know the difference between a warning 'no you will pay for this' and...
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One of the effects of being mostly homebound is that I have fewer adventures. Adventures were a big part of my life. I miss them. So I'm...
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Just been having a look online to see what other people have in their freezer to get ideas, but I can't find anything. (Probably not looking hard...
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Getting past my fear of resting Earlier on in my illness, I felt a fear of resting, and of falling asleep. I was afraid that if I rested, or fell...
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From @Learner1 's markers Total hours of sleep in 24 hours - 9 Number/hours of naps per day - 2.5-5hrs non-sleep meditative rests. Occasionally...
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I tried to Skype with my team during a session they were having, and I couldn't really contribute, and now I feel not useful, and I really miss...
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- no AV after dinner - phase out drinking as much water - half a cup less to start with - drinking too much water may be habitual. - though my...
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...or to undertake an activity or to rest instead, etc. This is, according to guidance of my CFS clinic, something that happens before treatment...
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I have been drinking 12-15 pints of water a day for as long as I have had ME/CFS. The CFS specialist nurse recently said that it's NOT an ME...
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