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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Blog entries by Leslie

L
Leslie
statistics of ME/CFS
Leslie
1 min read
Views
451
Comments
2
User Blogs
I was wondering if anyone has heard of the statistics of ME/CFS in the US. I have heard many different numbers.....6 million? or.....for every 100,000 the range of 7 to 3,000!! Shocking that we don't know. What has anyone heard? I would be interested to know. Thanks, Leslie
L
Leslie
a certain protocol, has anyone heard of it?
Leslie
1 min read
Views
1K
Comments
11
User Blogs
Has anyone heard of the "Guaicinafin Protocol?" Created by a Dr. in So. CA. It is a medication and diet. I am not sure if I spelled the medication correctly or not. Some people say they are able to get out, work, have a life......etc. Hard to believe if it did work so well it would not be...