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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To register, simply click the Register button at the top right.
Blog entries by Lassesen
Other Labs Analysis
Bioscreen Report
Biovis Microbiome Plus
Diagnostic Solution GI-Map
Genova Parasitology
Genova GI Effects
KyberKompakt Report
Medivere: Darm Mikrobiom Stuhltest
Medivere: Gesundsheitscheck Darm
Metagenomics Stool (De Meirleir)
Verisana Report
Ubiome
Upload Ubiome data
Another European test (Available here) for 121 Euro (more expensive than uBiome with less data provided). The analyis page is here.
Report
Data Entry
Example Result
This is an education post to facilitate discussing this approach with your medical professionals. It is not medical advice...
Another reader forwarded a report that I have not created an entry form for. This is one that is likely common in many parts of the world, especially in the US. To access it, click Diagnostic Solution GI-Map.
Report
Input Page
As before, entry matches the report. As with the other Genova...
Histamine Issues page is based on Alison Vickery's Web Site suggestions. Unfortunately to use the page requires a uBiome sample to have been uploaded.
Here is an example report from one of the current contributors:
Downloading your uBiome data
After logging into uBiome, you will see an ‘Advanced’ tab on your menu bar.
Click it
A dropdown menu will appear
Click ‘Download’
Choices will appear on the left.
Click on Download Taxonomy (Json)
Depending on your browser, you may see the data in a new tab or...
A patient of his forwarded me the Metagenomics Stool results from Laboratorium voor Medische Ontledingen. I have created a page to derive recommendations from it: Metagenomics Stool (De Meirleir).
Report
This is a long report with over 50 genus having ranges. An example is below
Enter Page...
A reader forwarded their results — I am attempting to stop manually shifting data, instead create an entry page that does a better job. The page: Diagnostic Solution GI-Map
The Report
The Input Screen
Recommendations
Bottom Line
Welcome to the world of self-serve!
This is an education...
A reader is up to 90% recovered and shared her uBiome. Bifidobacterium and Akkermansia has returned; Lactobacillus has made a start. The reader also lists what helped her get there. Her Firmicutes:Bacteroidetes ratio is still off and she still has overgrowths of some bacteria genus (three of...
A reader informed me that he has just gotten his 4th ubiome done. This is especially interesting because he recorded his Health Score when each one was done — thus we may be able to see patterns between the microbiome and the health score.
The Raw data
A Narrative
Best: 65%...
Symptoms:
Extreme fatigue,brain fog,adrenal fatigue/low cortisol,high th2,constipation alternating to loose stools,bloating,depression,underweight. High levels of klebsiella pneumoniae found in stool test. All of the the typical CFS symptoms.
Standard Elements
Firmicutes to Bacteroidetes...
The best starting point is to get a uBiome done. It is unlikely that you are high in ALL bacteria genus (a lower level of identification). The uBiome will identify the genus that are high.
At a very high level, CFS patients always have a shift in the Firmicutes:Bacteroidetes ratio. But the...
Revisiting old Ubiome’s “C”
A year ago, several readers shared their ubiome for me and I did a series of post looking for patterns. See this post on the Genus Numbers.
It is time that I do deep dives for these early sharers.
Results C:
Diagnosis: ME/CFS, POTS, MCAS, IBS-C, mold illness. No...
Your patient may have referred you to this blog. This physician directed page may assist you to get up to speed on evaluating the risks, benefits and logic of a model that I am proposing. I am not advocating a specific generic treatment, but a way of approaching treatment for individual CFS...
This drug has become a hot topic in some CFS circles. Whenever a topic becomes hot, I try to compare it against my microbiome model. In the past, there have been a good hit rate for those that cause some improvements -- the responders appear to be those CFS patients that happen to have a...
A reader forwarded me two reports, one from a male and one from a female. No notes on the people (I am fine with that). The report appear to be superior to uBiome on two counts:
It's a professional grade report from a clinical laboratory
It reports down to the strain level on occasion.
This...
A reader forwarded me two reports, one from a male and one from a female. No notes on the people (I am fine with that). The report appear to be superior to uBiome on two counts:
It's a professional grade report from a clinical laboratory
It reports down to the strain level on occasion.
This...
A reader forward their results from Biohm (link to kit, $117) with the expected disclaimer:
As a general wellness product, the BIOHM Gut Report & BIOHM Candida Report are for informational purposes only and are NOT intended for use in the diagnosis, cure, mitigation, treatment, or prevention...
In several of my deep dives, Lactobacillus Kefiri is mentioned as being effective against selective bacteria genus over growths. A reader in Spain found that it is available!
It is not just available, but the strain is given: Lactobacillus Kefiri LKF01 (DSM 32079) LKEF Store URI (In EU)...
When I first received Symbioflor-1 and Symbioflor-2, it was a surprise because they were both liquids with droppers to take them.
A reader forwarded me a link to an PDF/Scan article from 1993 with interesting results using Oatmeal Soup. Lactobacillus was detected for almost 2 weeks after.
"A...
In my previous analysis of uBiome results I was working off older data. I have now incorporated studies from 2017 where specific probiotics types influence has been identified.
Certain probiotics are known to increase overgrowth of specific bacteria genus :-( and other specific probiotics are...