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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Blog entries by lartista
URGENT : ME/CFS Patient "A C T I ON"
Must email by Dec. 6th Thursday to AAC@fda.hhs.gov
On December 20th 2012, ME/CFS patients have the chance to be involved with approving a treatment specifically for CFS/ME. Ampligen patients will testify. Whether you’ve been on Ampligen or not or you wish...
See and hear my latest chat and rave about ME/CFS on my YOUTUBE VLOG CHANNEL at:
:cheeky grin::cheshire:
KAISER ME/CFS PATIENT ADVOCATE
"http://www.youtube.com/user/kaiserMECFS?feature=mhee"
From Umbria, Italy to Denver, Colorado.... I report as I go with my illness and new meds. Miami's Dr. Nancy Klimas is my coach and leader. Currently I am sicker than a dog @ week 2 - day 2 of Imunovir.... not...