• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Blog entries by Cheesus

Cheesus
Cheesus
Trip to the neurologist
Cheesus
3 min read
Views
3K
Reaction score
28
Comments
25
User Blogs
Warning: strong language ahead. I have just returned from an appointment with a neurologist. I am very severely affected so had to attend by stretcher ambulance. I have barely left my room for years (only been to the bathroom a handful of times), and haven't left my house at all for even...
Cheesus
Cheesus
I just had a bath!
Cheesus
1 min read
Views
2K
Reaction score
27
Comments
13
User Blogs
Today I was able to get to the bathroom and have a bath for the first time in two and a half years. I have not had a bath (or shower) since December 2014. Instead I have had to be washed by a carer whilst lying down in bed. I am pleased to report that I am now cleaner than I have been for a long...