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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Blog entries by cfsboston
This is a really good article about CFS and oxidative stress. There are dozens more if you simply google: "CFS and oxidative stress."
http://chronicfatigue.about.com/b/2012/02/02/oxidative-stress-in-chronic-fatigue\-syndrome.htm
When Luc Montagnier won the Nobel Prize for his discovery of...
My blood has been to CDC-Atlanta twice now. Facilitated by the United Nations, I have been out of the USA twice now to meet with Nobel-awarded scientist(s). My blood has been to Path labs in Washington, DC and a 100 other scientific places. In a conversation I had, with the Head of CDC's...
By Neenyah Ostrom
Source: http://www.fms-help.com/aids.htm
Table of Contents
Foreword
1. Some CFS Patients May Be "Non-HIV AIDS" Cases
2. A Virus Found In AIDS Patients Is Found In CFS Patients With Brain Lesions And May Be The Primary Attacker Of The Immune System
3. HHV-6...
Here's a sample letter to send to U.S. Senators and Congressional Representatives. Please feel free to edit as you see fit. Since they are government representatives, they do not have separate email addresses so you'll have to copy and paste your letter into their online contact forms...
I am a CFS/ICL/Non-HIV AIDS patient.
I remain infuriated by my government's betrayal of her people. Most CFS patients believe that their government has their best interest at heart, and sadly that is entirely untrue. So, to a lesser extent, I remain bothered that CFS patients' do not...
It took me years to get over this first hurdle, as I was so brainwashed. If others can get beyond this hurdle too, I believe that we (as CFS patients) can get to the funding faster.
Chronic Fatigue Immune Deficiency Syndrome (CFIDS/CFS) is not a disease. CFS, as its name suggests, is a...
The medical establishment will have you believe that Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is some sort of mysterious illness, but its no mystery to me; CFS/ME leads to HIV-Negative AIDS, idiopathic CD lympocytopena (ICL), a clinical diagnosis that I possess.
How can...