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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Another Milestone, in more ways than one

Its my birthday today. I am now 54 years old.

And still recovering from CFS. Both in the long term (17 years and counting) and in the short term, from a crash that started about a month ago.

I had been hoping that with better health this year, that this couldnt happen anymore. And now I know. It not only can happen, it can usher in all the old symptoms with all the old intensity.

Horrifying. Stopped my life in its tracks once again.

But the difference this time, has been that I have had breaks in the symptoms each day, sometimes only an hour here or there, other times Im good most of the day, just get worn out and fragmented after too much activity and not enough rest.

Too much just happens to take a lot less than it did, and not enough means I need way more rest than Ive been needing most of this year.

So! I have learned a valuable lesson once more. It is still possible to fall off of this cliff. I will try to be more aware and respectful of my very real limits. Again.

For the present, I am planning on enjoying my 54th birthday.


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