(The CFSAC meetings are the only time during the year when ME/CFS advocates sit down and prod federal officials to do the right thing. We all know the statistics - we know the federal government has basically been pretending we don't exist for decades. The action Bob, Rivka and Charlotte created initiates a new brand of advocacy effort that tells them that we're not going to sit still for more of the same.)
From Bob, Rivka and Charlotte
On the heels of the September 7, 2010, historic NIH meeting with ME/CFS patients and their families, now is the time to let our federal health agencies know we are expecting big changes. The more they hear from us now, the more they'll listen to us next time we meet. Our "Time for Action" campaign is advocacy made easy -- yet it will have a huge impact. We ask patients, their families and friends to email, call and/or fax NIH Director Collins and NIAID Director Fauci with this simple question every day.
(Please click "Add Cc" in your email and put Bob Millers email address - hebs1reel@yahoo.com- in the Cc: box of your email - so he can keep track of how many emails are sent. )
Name: John Doe (or John)
Location: Miami, FL
Time: Sick 12 years
Contact info:
1) National Institutes of Health
Director Francis Collins
Email: collinsf@od.nih.gov
Cc to: hebs1reel@yahoo.com
Phone: 301-496-2433
Fax: 301-402-2700
2) National Institutes of Allergy and Infectious Disease
Director Anthony Fauci
Email: afauci@niaid.nih.gov
Cc to: hebs1reel@yahoo.com
Phone: 301-496-2263
Fax: 301-402-3573
From Bob, Rivka and Charlotte
On the heels of the September 7, 2010, historic NIH meeting with ME/CFS patients and their families, now is the time to let our federal health agencies know we are expecting big changes. The more they hear from us now, the more they'll listen to us next time we meet. Our "Time for Action" campaign is advocacy made easy -- yet it will have a huge impact. We ask patients, their families and friends to email, call and/or fax NIH Director Collins and NIAID Director Fauci with this simple question every day.
(Please click "Add Cc" in your email and put Bob Millers email address - hebs1reel@yahoo.com- in the Cc: box of your email - so he can keep track of how many emails are sent. )
Dear Directors Collins and Fauci,
What have you done for ME/CFS today? Patients and their families are waiting.
What have you done for ME/CFS today? Patients and their families are waiting.
Name: John Doe (or John)
Location: Miami, FL
Time: Sick 12 years
Contact info:
1) National Institutes of Health
Director Francis Collins
Email: collinsf@od.nih.gov
Cc to: hebs1reel@yahoo.com
Phone: 301-496-2433
Fax: 301-402-2700
2) National Institutes of Allergy and Infectious Disease
Director Anthony Fauci
Email: afauci@niaid.nih.gov
Cc to: hebs1reel@yahoo.com
Phone: 301-496-2263
Fax: 301-402-3573
For more Inspiration Check Out Our "How To" video:
- Organizers: Robert Miller, Rivka Solomon, Charlotte von Salis
- Contact: bobmiller42@msn.com
