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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Not Exactly an Emergency / The Beat Heat ManifestoI would suggest trying one of the over the counter products by Nestlé first. More affordable. The Liquid Hope and the Kate Farms formula cost... -
Not Exactly an Emergency / The Beat Heat ManifestoIs this the product you have been using ? https://www.functionalformularies.com/product/liquid-hope-peptide-high-protein/ I might have to get... -
Not Exactly an Emergency / The Beat Heat Manifestothe landlord sent the workers there, unsupervised, and so technically they paid the fine. but then nobody turned the power back on. Details...
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Not Exactly an Emergency / The Beat Heat ManifestoThat was mean esp since I cannot see how any of that was your fault.
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Not Exactly an Emergency / The Beat Heat ManifestoOh the door looks bad. Found myself here, in this new abode, with two automatic garage doors with like bicycle chains that pull one or the other...
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A bit of history in the first couple:
OF PEOPLE & PLANTS The Autobiography of Europes Most Celebrated Herbal Healer by Maurice Messegue - (born 1921)In a remote French village in the province of Gascony, the young Messegue learned from his father the plant lore handed down by generations of...
Having this condition for 32 years, I've had a LOT of time to be alone with myself and observe my inner process--my mind and its assorted little insanities. :cool::confused::(:mad::p:p:eek:;)
When I first became ill in 1977, at age 20, most doctors did not even know what an immune system was...
I am really, really curious on this one. I have been reading many of the treatment regimes with great interest. Many of them are both complicated & way over my head.
I admire so many of you, in your understanding of these deficiencies & bodily dysfunction attributed to ME/CFS and FM...
CDC/CFSAC BLOGS #2
International Workshop - Clinical Management of CFS
The aim of this workshop (to be held summer 2009) is to establish a collaborative international consortium of investigators who will present and discuss evidence- and practice-based findings related to the treatment, and...
Sometimes I think I'm okay, I'm going to make it, this isn't so bad, & sometimes I think, I'm only trying not to die every day, & this might be the best it will ever be. It is hard to be the one on the list that no one knows what to do with, even the professionals & the experts. This is one of...
(An extract from my diary early August 2009, with a few words of explanation tacked on)
Pain & Suffering.
In the early hours of last Wednesday morning (5th August), I awoke bathed in perspiration and drenched in the most unbelievable pain imaginable. This was it, I thought. This was the...
Not only are the 38 Bach Flower Remedies free from side effects & inexpensive, they are simply administered, even to those most debilitated (and unable to take harsh drugs & other invasive treatments).
Everyone of us is a healer, because every one of us at heart has a love for something, for...
What is the Paleo Diet ?
The paleo diet is simply the hunter-gatherer diet of the Paleolithic era (ie before the Neolithic age when man became agriculturalists).
Our Paleolithic ancestors were lean, fit and free from heart disease and the other ailments that plague Western countries. They...
A year ago I tried examining the question of why ME/CFS patients have been so unable to advocate for themselves effectively, particularly in the arena of fundraising. Except I did not find my thoughts particularly enlightening, even as I have continued to feel there are good reasons to explain...
Why I like birth? Everything to do with birth? Because it feels like a do-over. Every birth I've been to has been special, each one different, & I've felt lucky & honored to be there. Like witnessing a re-do of my own life. At a birth, right before the baby is born, time stands still, & you...
THE CDC/CFSAC BLOGS #1
Dr. Ken Friedberg, board member of the IACFS/ME, just reported the first documented case of a person coming down with chronic fatigue syndrome (ME/CFS) as a result of getting the swine flu virus. This is what he said:
A Hard Hit Group Swine flu is often innocuous...
I woke up Tuesday with a sticky despondency I have not felt in a very long time. It was early -- that is, in Michelle-world, 1 pm -- as I had an appointment with my primary care provider to discuss the lower right abdominal pain I've been having for five years. Except I knew there was little...
My level of functioning today.
More importantly, your age.
2: The number of times in an hour you ask me to play.
2: The number of times I say no.
2: The number of words in the phrase, I'm sorry.
I'm trying, but I'm so weak. I am used to being weak sometimes. But you are not used...
The word fuck never crossed my lips until I got sick. Until I got vertigo, to be exact. I had just started my first grown-up (i.e. non academic) job (Public Relations) in June 2000. I even had my own cubicle and business cards. Then I woke up the day after Independence Day with everything...
My food sensitivities are finally catching up to me. A few weeks ago, I felt my throat close up after eating pumpkin seeds. I know that food category can be a little weird for people, so I didn't think much of it, until last night, when my throat started to close after eating a spirulina bar...
I'm trying to catch any anatomy of the Year of the Tiger. I want 2010 to be here, to wipe this year off the map. Eeny meeny miney mo is also how, you may have observed, dear readers, I seem to choose my supplements. Today I did one dose of Asian goo. I finally realized where I recognized the...
I was at a 3 when I got up today, sooo exhausted, & took the Fluconazole, realized I still had an empty stomach so gave the lactoferrin a whirl (it does have , after all), then felt brave enough to try the Asian goo, which was my one hit of sugar for the day. I also felt much better after skin...
...that B-12 is too much to take b/c of the mercury/metals, that I should be taking MSM to clear it...what next? I'm so confused!
I think I was again sidelined by an encounter with some delicious rice/corn chips; if I don't get a hold of DN soon, I will totally lose my mojo to become a...
Also, Dude, Chronic Fatigue is not the preferred nomenclature. Myalgic Encephalomyelitis, please.
I have drawn a line in the sand when it comes to coffee & milk in the mornings. For this, I may not budge on. It is my Shomer Shabbos. Besides, both goat & rice milk taste pukey & hemp milk...
John Herds recent post on the past and future of ME/CFS advocacy provided a welcome change in tone from many of the strident posts weve seen lately and provided much room for thought. An important part of the post, however, was more of the same; while the posts tone was mild the post itself too...