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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Not Exactly an Emergency / The Beat Heat ManifestoThis! Glad you are OK (but watch that heat) and love the sunset....beautiful. -
Not Exactly an Emergency / The Beat Heat ManifestoNo need to apologise I love to hear your thoughts as well as your adventures -
Not Exactly an Emergency / The Beat Heat ManifestoYes it is and what I refer to as 'just the right temps' are making me reminiscent of growing up in California. And what is strange is the last... -
Not Exactly an Emergency / The Beat Heat ManifestoHoping the NWS Phoenix has this right - supposed to be cool into the weekend, which equates to more freedom and frolic out and about 🦼
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I want to thank Cort and whoever else works on this site for the easy chat forums...:thumbs up:
:Sign Thanks:
Here is a video that explains some of Monsanto's history and how they are taking over every crop on the planet with GMO seeds. Monsanto isn't just the creator of aspartame, they created the Bovine/cow growth hormone, Agent Orange for the Viet Nam War, and they create pesticides. That's just...
Something I sat down and wrote today.
it's like having runners block
all the time
it will break you down to the core
it will beat you into submission
you will be pushed beyond your threshold
then pushed some more
you will lose that which you did not know could be lost
you will be...
The Festival
by Miroslav Holub
At the festival of patients
with all the known diseases
the crutch choir sings
for the pacemakers.
The double astigmatic landscape
gratefully swallows the murmurs
of the mitral valve.
In the candlelit college hall
corticosteroids anoint psoriases...
Diagnoses
by Miroslav Holub
Measles provoke
the onset of evening, like heavy felt.
Cavities in teeth
open rocks.
Smallpox pits
give contours to the map.
Radiation diseases
show us our place in the cosmos.
Liver inflammations heighten
Fragonard's sensitivity to...
We did it! We got that 1/2 page Ad out into the Washington Post and do believe that that AD gave the Federal health organziation heads and policy makers a rather big shake up. We are seeing changes for the positive and we are being treated differently - more respect and not being ignored. I...
In the years following the fall of the Berlin Wall, I was lined up by the fire with the old people. I was just there trying to get used to my new existence as a doorstop. And as I waited, before me those loved ones of the older generation toppled over one after the other. These, my elder...
Thinking about taking LDN, and the process of slowly increasing the dosage, has coincided with taking Furosemide for water retention. I hope my reaction to LDN isn't the same as my experience with the diuretic...
My experience of drugs, legal and otherwise, is that, quite often, I have a...
Took a dose of 1ml (=1mg) LDN last night, without too much ill effect - I think I'm getting used to the stuff now. I want to get up to 1.5 as soon as I can (the recommended initial dose), so that, psychologically, I feel like I'm, at least, at the start of maybe getting somewhere. Atm I'm...
Ive been scratching/cutting myself trying to relieve my stress level (endophins) as Im so so stressed out as I have to attend an appointment in the city today and arent up to it at all. Cutting to relieve stress levels (for endorphin rush) is something I hadnt done in a while. So its upsetting...
I missed last night's LDN and I'm about to take a dose now.
I'm increasing it to 0.8ml and it's now 4.30pm - hopefully it won't keep me awake tonight - having taken the dose earlier in the day, rather than midnight, as I had been doing.
I posted on the Low dose Naltrexone thread the other day and thought it might be helpful if I blog my initial LDN experiences, so here goes...
First off, I'll copy (with a couple of corrections) what I wrote before, after that I'll be updating in real-time...
Our son is 25. He has been complaining of many of the CFS symptoms since 2007. He was able to graduate from college in 2008. But his symptoms rapidly worsened and he was forced to come back home to live. We have been to many doctors in town as well as flying to drs. far from home. No one has...
Here is an interesting article I wanted to share with you from Natural News.com :innocent2:
If given a fair choice, most consumers would choose alternative medicine over conventional health care
Learn more...
The Quality of Life Blogs:
Explorations in Being (or Looking for Happiness in an Unwell World)
What is be- ing? Its very simple - almost too simple; it's just what it appears to be - its just be-ing - its the place present just before thought a place of stillness and peace that spiritual...
I am so disappointed!!!!
Last year it was covered and I paid about 60.00 a month for my portion.
I was told that even if I pay for it myself at 450.00 a month the money I spend for it will not be counted towards the donut hole.
I think that this is ourtageous!!!!!!
Pinky
OMG, words cannot express the screaming bodywide pain I am in. I'm having the week from hell with no break in site. And the more I do, the more pain I'm in.
I pushed it yesterday and did way too much because I have important things the rest of the week. So yesterday, I did laundry and...
Talk about reaching out and communication. Dennis Mangan, the leader of the CFS Working Group at the NIH, has set up a ListServe that will automatically send you information from the NIH on what their ME/CFS activities. This is another way Dennis is transforming the way the NIH operates with...