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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Medical updateOh Emma Just the reading and registering this. Made me cry. So much love to you you sweet soul 💗💛💗 Love and appreciate you so much! and... -
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Medical updateAwww, Andy. Very helpful ideas and You make some good points. Yes, something is up with my larynx. If I try to talk, much mucous forms over it...
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Medical updateCould also be minor damage from being sick. I had damage to my larynx due to spending a short time on a ventilator. Caused pain when swallowing...
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Medical updateThank you. I’m going to be honest, It GREATLY affected me psychologically. And, I’m definitely being careful with boundaries around her. I...
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Robert Sat
by Tom Matthews
The congregation was scandalized
When Robert sat in his pew and read a paperback
My mother said afterwards
"If he wasn't interested why did he come"
And I marvelled at her
For she never thought to apply the criterion to me
And I marvelled at Robert...
Yesterday? I finally found a mold specialist in my state (a friend suggested some other search terms and he came up right away with them.. I had no luck at all with all the terms I tried). The guy was advertising free mold inspections.
I emailed him not believing it would be free to get...
:sleepy: Sleepy here, but not sleepy at 5am in the morning, I am not going to fight my insomnia today, I already tried, it won again. :Retro smile:
So here I am three years or more down the line, I think I am getting closer to acceptance, but notice my own faults and weaknesses here and there...
I ended up quite sick and in pain yesterday.
I went a little to easy on the carbs ..and ate a dried biscuit and cheese with a glass of milk (21 gram carbs... a glass of milk actually has 13 gram carb, carbs are almost in everything so hard to keep right down). It sucks that I can eat...
Ive got a brand new granddaughter Tasmin Eve my daughter has named her. She's got a lot of thick hair just like my daughter had when she was born.
Im very happy about this new granddaughter as i really love children (I wish I had some more if i wasnt sick), and as other grandchild I dont...
Myra McClure said in an email to PR member Marty that she has stepped down from the "CFS" SEP! We did it!
Now lets get the dentists and psychologists (except for Friedberg) replaced with virologists, retrovirologists, neurologists and immunologists, so send out this email. OK, OK, I'll let...
I'm not even sure how I broke this. Woke up Friday with some swelling and pain, but as the day and night went on, it got worse and worse. Drove myself to the ER yesterday morning. The nurse was brainless and said he wasn't ordering an xray cause I didn't fall. But the doc on duty ordered...
Corinne returns for her second Followup visit since her first visit to Dr. Peterson in Sept. 2009. She had been on a protocol consisting of saline IV's, amino acid IV's, procrit, probiotics and Valtrex since April, 2010. How has this former fitness instructor but now mostly bedridden person with...
Ah, February. I should, like Target, devote myself this month to Eros. Although at Target perhaps every day is Valentine's Day: the bull's eye, the pit bull, the red, red, red.
Here are two works that appeared in a love and marriage issue of Quick Fiction a few years ago. It's a print...
UPDATE: Myra McClure Stepped Down from the "CFS" SEP! We did it!
We still need to get the dentists and psychologists (except for Friedberg) replaced with virologists, retrovirologists, neurologists and immunologists, so please refer to my latest blog post for an easy letter you can send on...
Mortal Poem
by Dean Young
I do not understand why I love you.
The mustard in your hair? Your breasts
like shiny battleships, your thought control?
Reasons seem so insufficient, reason itself
seems insufficient. The sea rushes up
to the beach of no reason, inveigling
chimes of no...
by Tina Marie Miller Tidmore on 31 January 2011 ( The ME/CFS Worldwide Patient Alliance - MCWPA)
New Congressmen have settled into office, but they do not realize there is a health threat that deserves more government funding. So let's tell them. The previous fax campaign was successful in...
(originally posted at Sundog Tales)
What is Healing? I have pondered this question many times.
Recently, I have begun to see signs of deep physical healing at long last, but why? What has changed?
I now sleep 12-15 hours a day. Thats a 10-12 hour night and one or two naps during the...
Emmanuelle asked if "From My Commonplace Book" is a collection of writings I like, and the answer is yes.
A few years ago, I was given a beautiful leather-bound journal, and I decided to write in it passages I liked from books I'd borrowed from the public library.
Recently I decided to...
:Sign Thanks:
I live in a senior/55+ high rise. There is a provision here that lets "kids" like me live here, so long as we are verifiably disabled with a mobility kind of issue. So, here I am.
Last night the seniors and another 'youngster' met for a talent night. It was pretty amazing...
excerpts: Two Kinds of Decay: A Memoir
by Sarah Manguso
My mornings were occupied by bathing, eating, drinking a protein drink, having my central line dressed and flushed by the visiting nurse, and exercising pathetically little with the visiting physical therapist. After the fourth or...
My ability to create makes an a appearance for short periods, little and far inbetween so this is result...
Poem by:
Sonja Steyn 11-1-11
We are fighting this on our own.
So few on our side, mostly us alone.
Even less to understand.
Who's...
What is ME/CFS in Vermont like? Invisible suggests that its much like it is in the rest of US. A struggle for health and a struggle to maintain ones sense of mental well-being in the face of a medicals communitys disregard and often disdain. Vermont does have something or rather someone...
Well written, concise and targetted letter/petition - please sign. Hit link below.
http://health.change.org/petitions/view/tell_cdc_to_change_their_mecfs_research
191 sigs at 11am est - 25 Jan - Goal is now 500. We can hit this goal within another two days or so.
The petiton was such a...