SWAlexander
Senior Member
- Messages
- 1,946
Sorry to intrude. I stumbled on a paper related to Neuropathy:
Connecting TDP-43 Pathology with Neuropathy
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Supplement ideas for neuropathy
- Thread starter Mimicry
- Start date
Mimicry
Senior Member
- Messages
- 179
Good news, I finally found out that the skin biopsy shows no small fiber neuropathy so no nerve damage! Apparently the pain is from ME itself. The vitamins don't seem to be helping the nerve pain anymore (though my migraines fortunately are still mild) but I also ordered phosphatidyl serine, so I'm gonna add that to my supplement stack next.
Mimicry
Senior Member
- Messages
- 179
So, turns out phosphatidyl serine aggravates MCAS and it has made my symptoms (migraine, pain issues, POTS, PEM) much worse. (So did inosine, btw.) I'm super annoyed that I spent so much money on them but I'm glad I'm one step closer to solving the mystery behind my symptoms, because I've been wondering if I have MCAS and it seems like I indeed do.
Mimicry
Senior Member
- Messages
- 179
Apparently folic acid (and any form of folate, due to it molecularly resembling glutamate) also increases histamine production, and my B12 supplement contains that... Bummer 😞 I need to find a new one, fortunately they're not expensive.