AngelM
Senior Member
- Messages
- 150
- Location
- Oklahoma City
I am not certain this is the right place to ask this question. And I don’t want to bore everyone by repeating the same story I have told on the forum before , so I will keep it short.
A year ago, I had a abnormal striated muscle AB test. Since my daughter has Myasthenia Gravis, the result was unsettling. I traveled 700 miles in order to see a neurologist listed on the MG Foundation’s neurologist list. She looked at all the test results, including those she had requested that my PCP run before my appointment. She looked at the MRI, checked my muscle strength, had me walk a straight line, and then abruptly dismissed me—saying I was “totally healthy.” I just learned the results of a second striated muscle AB test done two weeks ago, and it is more elevated this time than it was a year ago. My symptom’s are much worse than last year, my vision blurry off and on, and I continue to be wobbly when I walk. The note the doctor included with the test results was “See a neurologist.”
This is all so very upsetting. A year ago I went through the expensive process of seeing a neurologist in another state listed on the MG Foundation website—because there is no MG specialist here.
I don’t know what to do at this point. I don’t want to repeat going down the same very expensive rabbit hole as last year. I don’t understand the test, what it means, what illness, if any, it might indicate. I really need advice from anyone who has had a similar experience. MG is not hereditary—at least not to my knowledge—so I don’t think that the fact that my daughter has MG is relevant. I don’t know what to believe. I am totally lost.
A year ago, I had a abnormal striated muscle AB test. Since my daughter has Myasthenia Gravis, the result was unsettling. I traveled 700 miles in order to see a neurologist listed on the MG Foundation’s neurologist list. She looked at all the test results, including those she had requested that my PCP run before my appointment. She looked at the MRI, checked my muscle strength, had me walk a straight line, and then abruptly dismissed me—saying I was “totally healthy.” I just learned the results of a second striated muscle AB test done two weeks ago, and it is more elevated this time than it was a year ago. My symptom’s are much worse than last year, my vision blurry off and on, and I continue to be wobbly when I walk. The note the doctor included with the test results was “See a neurologist.”
This is all so very upsetting. A year ago I went through the expensive process of seeing a neurologist in another state listed on the MG Foundation website—because there is no MG specialist here.
I don’t know what to do at this point. I don’t want to repeat going down the same very expensive rabbit hole as last year. I don’t understand the test, what it means, what illness, if any, it might indicate. I really need advice from anyone who has had a similar experience. MG is not hereditary—at least not to my knowledge—so I don’t think that the fact that my daughter has MG is relevant. I don’t know what to believe. I am totally lost.
