Some time ago I did two poor man's POTS tests. Lay on the sofa for 15 min and my pulse went down to 88. Stood up and it hit 126 fairly quickly and then hovered around 115 to 126 over the next ten minutes.
Both times I did this I got a very clear spike in HR of more than 30 bpm and over 120, which I thought meant POTS.
Saw the Cardio on Tues.
He says that I don't have POTS because on a 24hr ECG my HR didn't go above 126. He has evidence that it can hit 148 on a bad day, but he does't seem to take my own measurements seriously even though I photoed the pulse-oxometer and Sphig.
He has dx Inappropriate Sinus Tachy, because my sitting resting pulse is 100+ but when I said I thought my supine pulse had to be high as well, he said no.
He has prescribed Ivabradine.
In doing so he said "You better not have POTS as this is contraindicated."
Having had some nasty palpitations and black outs last night while sitting still I thought I might check out Ivabradine and POTS.
Research papers, even by Julia Newton show that Ivabradine is used to treat POTS with varying levels of success, but I can't find a single published paper that says it's contraindicated.
So I am now very confused. I like this Cardio, but the feeling that he is either not as specialist in POTS as he says he is, and that he has lied to me, isn't helping by already almost non existant trust in doctors.
Anyone have any ideas about this? Have I missed something?
Both times I did this I got a very clear spike in HR of more than 30 bpm and over 120, which I thought meant POTS.
Saw the Cardio on Tues.
He says that I don't have POTS because on a 24hr ECG my HR didn't go above 126. He has evidence that it can hit 148 on a bad day, but he does't seem to take my own measurements seriously even though I photoed the pulse-oxometer and Sphig.
He has dx Inappropriate Sinus Tachy, because my sitting resting pulse is 100+ but when I said I thought my supine pulse had to be high as well, he said no.
He has prescribed Ivabradine.
In doing so he said "You better not have POTS as this is contraindicated."
Having had some nasty palpitations and black outs last night while sitting still I thought I might check out Ivabradine and POTS.
Research papers, even by Julia Newton show that Ivabradine is used to treat POTS with varying levels of success, but I can't find a single published paper that says it's contraindicated.
So I am now very confused. I like this Cardio, but the feeling that he is either not as specialist in POTS as he says he is, and that he has lied to me, isn't helping by already almost non existant trust in doctors.
Anyone have any ideas about this? Have I missed something?