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Hi All,
This is a duplicate of a new thread I began on the members section.
I have a basically understanding N.D. who is managing all my care since my ME/CFS specialist discontinued his practice. She knows I'm ill and sees me lying down at each appt. I am mostly bedridden, except for 1/2 hour at mealtime. I cannot walk at all by myself. My husband has to "drive" me back and forth to the bathroom at all hours of the day & night. I cannot walk more than 20ft. X 3 laps, done 3 X/day even with my husband holding my arms outstretched. I tap my feet for building blood flow.
I think my Dr. would accept it if I could prove to her that, for patients at my severity level, more exercise than that would be counterproductive, but I need documentation. Obviously, I would have preferred to keep a doctor who already knew this, but that was not possible. This is the best I can do in my area.
So, what would be helpful would be scientific info ranking different levels of activity and, if possible, what percentage of ME/CFS patients are at my level. Thank you for helping me. I may post this at other places since I don't know the best place to ask it. Forgive my redundancy.
This is a duplicate of a new thread I began on the members section.
I have a basically understanding N.D. who is managing all my care since my ME/CFS specialist discontinued his practice. She knows I'm ill and sees me lying down at each appt. I am mostly bedridden, except for 1/2 hour at mealtime. I cannot walk at all by myself. My husband has to "drive" me back and forth to the bathroom at all hours of the day & night. I cannot walk more than 20ft. X 3 laps, done 3 X/day even with my husband holding my arms outstretched. I tap my feet for building blood flow.
I think my Dr. would accept it if I could prove to her that, for patients at my severity level, more exercise than that would be counterproductive, but I need documentation. Obviously, I would have preferred to keep a doctor who already knew this, but that was not possible. This is the best I can do in my area.
So, what would be helpful would be scientific info ranking different levels of activity and, if possible, what percentage of ME/CFS patients are at my level. Thank you for helping me. I may post this at other places since I don't know the best place to ask it. Forgive my redundancy.