(Apologies if this is already being discussed - couldn't find it through a search.)
Have you seen this ad for a study at Mt Sinai Beth Israel, by Benjamin Natelson (if I understand things correctly)?
https://www.facebook.com/CFIDSAssn/photos/a.74987762107.90825.47921632107/10152746962142108/?type=1
Do we know if they are studying ME/CFS (PEM mandatory), Fukuda-CFS or the very broad concept "chronic fatigue"?
I find the wording confusing. In the headline they ask for people with "fatigue with no medical explanation". They then go on to talk about chronic fatigue syndrome, but as we know those two are different entities.
It could be that they are screening a lot of people with chronic fatigue to then find the very small number with actual ME/CFS - I hope that's the case, though it seems a round-about way to go about it.
I wish all researchers would be clear on the fact that ME/CFS and chronic fatigue are not the same, and make sure to study narrowly-defined ME/CFS where the characteristic symptom is PEM (for example using the Canadian criteria).
Don't ads like these add to the confusion?
Have you seen this ad for a study at Mt Sinai Beth Israel, by Benjamin Natelson (if I understand things correctly)?
https://www.facebook.com/CFIDSAssn/photos/a.74987762107.90825.47921632107/10152746962142108/?type=1
Do we know if they are studying ME/CFS (PEM mandatory), Fukuda-CFS or the very broad concept "chronic fatigue"?
I find the wording confusing. In the headline they ask for people with "fatigue with no medical explanation". They then go on to talk about chronic fatigue syndrome, but as we know those two are different entities.
It could be that they are screening a lot of people with chronic fatigue to then find the very small number with actual ME/CFS - I hope that's the case, though it seems a round-about way to go about it.
I wish all researchers would be clear on the fact that ME/CFS and chronic fatigue are not the same, and make sure to study narrowly-defined ME/CFS where the characteristic symptom is PEM (for example using the Canadian criteria).
Don't ads like these add to the confusion?
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