drob31
Senior Member
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So, I met with the head of Rheumatology at Hopkins today, Dr. Michele Petri. I started with her intern who seemed a little open minded and was clearly working through possibilities he recently learned in medical school. While they set me up with specific blood work and labs to look for a very narrow condition, I was unimpressed with some of the recommendations.
Fish oil is bad, and so is melatonin. However, flu shots and plaquenil are good. I may be taking this out of context, but that's literally what was implied. The rationale for this was that Fish Oils raise bad cholesterol, and melatonin has a bad effect on people with lupus.
Based on my symptoms and history, they could not classify me as having an autoimmune condition. However, they gave me the label of undifferentiated connective tissue disease. If you draw a VENN diagram with circles representing autoimmune conditions like lupus and APA, and like draw a circle that overlaps them, that's what I supposedly have. It basically represents the unknown.
Fish oil is bad, and so is melatonin. However, flu shots and plaquenil are good. I may be taking this out of context, but that's literally what was implied. The rationale for this was that Fish Oils raise bad cholesterol, and melatonin has a bad effect on people with lupus.
Based on my symptoms and history, they could not classify me as having an autoimmune condition. However, they gave me the label of undifferentiated connective tissue disease. If you draw a VENN diagram with circles representing autoimmune conditions like lupus and APA, and like draw a circle that overlaps them, that's what I supposedly have. It basically represents the unknown.