quercetin and bromelain and do they help any of your symptoms? If so, might be worth investigating MCAS.
I think I have a bit of MCAS, but also think for years I misjudged PEM as food reactions. I'd have a meal, then a few hours later I'd crash for a day. In retrospect, it was more likely the activity from a day or two before, but PEM seems so weird and counterintuitive that I think I always focused on food reactions. But it was frustrating because I'd have a food on Tuesday and be fine, same food on Thursday and I'd crash.
Thanks for the replies, sorry for not getting back earlier. Been a bit out of it with the nicotine patches.
No idea what either
are, or do, to be perfectly honest, and definitely never had them.
Pretty convinced it's food. It's like clockwork, I eat, within half an hour I'm dropping off to sleep. Sometimes, bizarrely feel the energy drain out of me as a sensation at the top end of my intestine. Sometimes it bizarrely feels like small explosions going on in there, and in my lower intestine.
@Andryr Well, apparently I'm pre-diabetic, but strangely my last blood test showed I had moved further away from diabetes.
@datadragon thanks. In regards to sensitivity to chemicals. I have a grey beard because the one time I dyed my beard black, I ended up with neuropathy, and have been stuck with it since. Although I believe it's common for ME sufferers, I'd had ME for the past 15-20 years without suffering it. It's not awful, and not painful, and I've got used to mentally blocking it, but it just feels like a 1,000 worms wriggling in my feet and legs.
@Judee Well, I'd say the nicotine most definitely increased my fatigue and lethargy, but I don't feel there was a sudden onset, unlike with this.
Thanks for the links.
Well, it seemed more inclined happen with certain foods, like sugary pastries. Also I suspect some specific foods like hazel nuts, I suspect. It can be hard to pin down, though. I've also never eaten oats for years because he would send my intestines into a mess. Coffee also messes me up - although, strangely, it doesn't seem to be the caffeine that's the culprit, as I get the same results with decaffeinated.
As I say, lately, it's gotten worse, and also the spectrum of foods now seems very broad.
Unfortunately what seemed to trigger this worsening, was I got double jabbed for flu and Covid (Pfizer) in the winter of last year, so I'm suspecting vaccine damage. I think I was also a little dumb getting both at once, as it gave my immune system more to contend with, but I wanted to make as few trips as possible.
I would be more inclined to suspect the flu jab, though, as my mother had had issues with it in the past, and I'd also been fine with my two other Covid Pfizer jabs. Really wish I hadn't got the flu jab, and I don't think I'll ever again.
