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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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open medicine foundation

  1. P

    What happened to covid? and the research into long covid... 2023 feels different

    Doesn't 2023 feel wholly different with respect to covid? While the country was obsessed with this virus for almost 3 years, especially that first year with lockdowns and 24/7 news coverage, etc, 2023 just has a very different feel. On some days I even forget about it. Offices are calling us...
  2. frozenborderline

    An Open Letter to the Open Medicine Foundation, by Kaylin Jones

    https://openletteropenmedicinefoundation.com/an-open-letter-to-the-open-medicine-foundation-by-kaylin-jones/ Another person asking the OMF to look into mold or environmental toxins in ME/CFS. So far they haven't responded. But lets keep trying. If anyone else has experienced environmental...
    • frozenborderline
    • Thread
    • activism biotoxins enviromental sensitivity mcas me/cfs mycotoxins open medicine foundation ron davis
    • Replies: 8
    • Forum: Advocacy Projects
  3. frozenborderline

    What outlets do we have to publish pieces of art or writing about this illness and theology or spirituality, or just any art about it?

    What outlets besides our own blogs can we publish art specific for ME/CFS peolle or people with chronic illness? Omf rejected a poem I wrote for supposedly being too dark, it made me very sad and made me think I cant really connect with people in the me/cfs community. Bc this particular poem...
  4. frozenborderline

    Concrete demands for the Open Medicine Foundation

    https://openletteropenmedicinefoundation.com/concrete-demands-for-the-open-medicine-foundation-and-other-me-cfs-researchers/ This website has much info, but this specific part with very specific demands about what kinds of research I would like to see done, I think may be the most important...
  5. frozenborderline

    "helpless" an essay on severe ME/CFS, becoming an unwilling canary/seer/etc

    https://atomicchesterton.blogspot.com/2020/06/helpless.html
  6. Pyrrhus

    Presentations from Ron Tompkins, David Systrom, Donna Felsenstein (courtesy OMF & Massachusetts ME/CFS/FM Association)

    Massachusetts ME/CFS & FM Association and Open Medicine Foundation Fall 2020 Event on Zoom October 24, 2020 Video 2: Presentation by Ron Tompkins and Q&A Video 3: Presentation by David Systrom Video 4: Presentation by Donna Felsenstein Video 5: Panel Discussion...
    • Pyrrhus
    • Thread
    • david systrom massachusetts me/cfs/fm association open medicine foundation ron tompkins
    • Replies: 0
    • Forum: General ME/CFS News
  7. dreamydays

    Escaping the metabolic trap (IDO)

    I still think the metabolic trap theory has some merit. Robert Phair looked into genetic problems and his current theory is that tryptophan metabolism gets overloaded and we don't have the ability to process it and so we get stuck in a trap. The enzyme which can process it is IDO1, as we lack...
    • dreamydays
    • Thread
    • ido metabolic trap interferon alpha interferon beta interferon gamma open medicine foundation oxymatrine robert phair ron davis
    • Replies: 53
    • Forum: General Treatment