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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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nih

  1. B

    Comment & submit ideas for the NIH ME/CFS Research Roadmap

    Jarred Younger posted a video about this a few days ago please also see the video:
  2. frozenborderline

    NIH misallocating funds and moving slow on Long covid research

    https://www.statnews.com/2022/03/29/nih-long-covid-sluggish-study/
  3. viggster

    NIH intramural research program update

    At the just-completed CDC Grand Rounds, Dr. Avindra Nath of NINDS spoke fairly quickly and he presented a lot of details. I didn't take good notes, so others should fill in. - NIH will do a 3 phase study, starting with observation (the first study w/ 40+ patients) through treatment - Immune...
  4. Pyrrhus

    NIH RECOVER study for Long COVID

    It looks like there might be a problem with the $1.15 billion that the US Congress gave to the NIH to study Long Covid... ONE: Late in 2020, the US Congress passed a bill providing $1.15 billion to study Long Covid. The US National Institutes of Health (NIH) has used this money to undertake the...
  5. Pyrrhus

    Search for NIH Research Funding Awards by yourself

    Search for NIH Research Funding Awards by yourself If you're interested in investigating US National Institutes of Health (NIH) funding for ME research, you can find some interesting bits of information available on the NIH's "RePORTER" search website. For example, here are the results of a...
  6. Pyrrhus

    NIH Conference: "Beyond the Symptom: The Biology of Fatigue" September 27 - 28, 2021

    There is an upcoming NIH Conference: "Beyond the Symptom: The Biology of Fatigue" September 27 - 28, 2021 https://web.cvent.com/event/4630788d-baa2-47fb-af01-0f5b8d0d92bd/websitePage:645d57e4-75eb-4769-b2c0-f201a0bfc6ce
  7. frozenborderline

    ME/CFS is a living death--why mortality isnt what matters in illness advocacy

    https://openletteropenmedicinefoundation.com/me-cfs-is-a-living-death/ https://openletteropenmedicinefoundation.com/me-cfs-is-a-living-death/ The title basically speaks for itself but the article is full of facts and figures about quality of life and how we can change our rhetorical...
  8. Pyrrhus

    Gender Disparity in the Funding of Diseases by the U.S. National Institutes of Health (Mirin, 2021)

    By the great Art Mirin: Gender Disparity in the Funding of Diseases by the U.S. National Institutes of Health (Mirin, 2021) https://www.liebertpub.com/doi/pdfplus/10.1089/jwh.2020.8682 Excerpt:
  9. Gemini

    NIH: ME/CFS "PEM" Focus Group Study Results Published

    The first paper from the NIH’s post-infectious ME/CFS study was published in Frontiers in Neurology: Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
  10. RYO

    NIH Intramural study update

    A newsletter was sent out today to study participants. I wish there was more data but I clipped study update section. “The Post-Infectious Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (PI-ME/CFS) study has been active since fall of 2016. Our team has decided to put together this...
    • RYO
    • Thread
    • https://forums.phoenixrising.me/attachments/image-jpg.14652/ nih
    • Replies: 34
    • Forum: Latest ME/CFS Research