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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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immunoglobulin

  1. C

    Phd thesis: Investigating Immune Reactivity to the Intestinal Microbiome in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Seton, 2022)

    Abstract Introduction: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) pathogenesis is thought to be multisystemic, including the immune and gastrointestinal systems. A proportion of patients experience gastrointestinal disturbances with evidence suggesting a leaky gut. It was...
  2. aurel

    lasting worsening after immunoglobulines (gammanorm)

    I started taking subcutaneous immunoglobulines (gammanorm) in spring of 2020 (prescribed by KDM). Before the treatment, I was able to work 30h per week and go for 30 minute walks daily. I did the treatment for 6 weeks (one injection per week) and felt a continuous deterioration. At first, I...
  3. Sing

    BriovaRX Infusion Services?

    Has anyone here in the U.S. had experiences with BriovaRx Infusion Services? I just started with them for SCIG (sub-cutaneous IGG infusions). My questions about them have to do with the quality of this organization. If you don’t want to read this long post, even a simple answer would be helpful...