I just wanted to encourage everyone out there who has a webcam to please tell your story on Youtube. Tell people on video how this disease has affected your life. The more stories we post on video, the more we show the world how serious this disease is and that it is a real disabling physical illness.
There is power in media, there is power in numbers, and there is power in your own voice. People from all over the world watch videos on Youtube. Tell your story. Show them you are bedridden, show them you are stuck in the house. Tell the world all the things you can no longer do because of this disease. Talk about the symptoms.
The only way we will ever change things in this world is to fight for what we want. We need to fight the stereotypes and the bad press and the horrible name and the psychiatric lobby. You can fight back by telling your story to the world.
It's not hard to make a Youtube video. Just start talking, tell your story. You can do it from your bed or from a couch. Just do it. Tag it with everything you can think of: CFS/ME, CFIDS, Chronic Fatigue, Fibro, Fibromyalgia, Myalgic, Lyme. Just do it. The more stories we have up there, the more people will listen.
It's also important that caregivers and family members tell their story, too. If you are a parent of a child with CFIDS/ME, tell your story. It is so important to get these stories out there on video. Video is even more powerful than just a written webpage. Show the world what is really happening with this disease.
There is power in media, there is power in numbers, and there is power in your own voice. People from all over the world watch videos on Youtube. Tell your story. Show them you are bedridden, show them you are stuck in the house. Tell the world all the things you can no longer do because of this disease. Talk about the symptoms.
The only way we will ever change things in this world is to fight for what we want. We need to fight the stereotypes and the bad press and the horrible name and the psychiatric lobby. You can fight back by telling your story to the world.
It's not hard to make a Youtube video. Just start talking, tell your story. You can do it from your bed or from a couch. Just do it. Tag it with everything you can think of: CFS/ME, CFIDS, Chronic Fatigue, Fibro, Fibromyalgia, Myalgic, Lyme. Just do it. The more stories we have up there, the more people will listen.
It's also important that caregivers and family members tell their story, too. If you are a parent of a child with CFIDS/ME, tell your story. It is so important to get these stories out there on video. Video is even more powerful than just a written webpage. Show the world what is really happening with this disease.