The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
Discuss the article on the Forums.

Young Leader on the Road to Recovery and Helping Others

Discussion in 'General ME/CFS News' started by JaimeS, Aug 16, 2017.

  1. JaimeS

    JaimeS Senior Member

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    Wow.

    https://www.stuff.co.nz/manawatu-st...er-on-the-road-to-recovery-and-helping-others

    ....nice for some?
     
  2. Philipp

    Philipp

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    At least it's a more believable story than improvements through GET, I suppose.
     
  3. Tilney

    Tilney

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    The God of GET ?
     
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  4. A.B.

    A.B. Senior Member

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    I heard this recently, but don't remember where: "patients have as much difficulty telling why they got better as they do with telling why they got sick".

    If I suddenly get better, I could go around telling people I got better by ranting on online forums about bad science.
     
  5. Valentijn

    Valentijn The Diabolic Logic

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    It'll be unbridled skepticism that heals me :cool:
     
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  6. JaimeS

    JaimeS Senior Member

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    Divine intervention is more believable. That's quite an indictment.

    I fully support you in this endeavor.

    Kind of literally: that's how I've made the gains I have so far... :cool:
     
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  7. arewenearlythereyet

    arewenearlythereyet Biscuit Antagonist

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    Sustained general stropiness with flourishes of sarcasm really healed my gut.
     
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  8. adreno

    adreno PR activist

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    Yeah, I asked him to do that. Thanks, dad!
     
  9. wdb

    wdb Senior Member

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  10. mango

    mango Senior Member

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    Was it Maureen Hanson, at the OMF symposium?
     
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  11. JaimeS

    JaimeS Senior Member

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    Regardless of belief system, I think it's irresponsible to say that religious practice healed you.

    It has Unfortunate Implications: that other religious people who are afflicted just haven't done the right religious practice in the right way, or haven't yet learned the lesson God wanted to teach them via their condition, or that God in some way favors the recovered person.

    I am sure that's not what people are really thinking when they are sick and become well and say such things, but it has to enter the minds of the religious and still-afflicted when they read / hear those statements. It seems thoughtless.
     
  12. rosie26

    rosie26 Senior Member

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    She's very young. I hope her better health continues.
     
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  13. JaimeS

    JaimeS Senior Member

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    That too. :)
     
  14. daisybell

    daisybell Senior Member

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    'Healed' = 6 hours of work a week.
    So on a good week I'm healed too! Nice to know..
    Seriously, it's great that she's out of bed and feeling a bit better, but there's no evidence at all that she's on the road to recovery...
     
  15. aaron_c

    aaron_c Senior Member

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    I've actually been told #1 and #2. I think they put a "maybe" in there--reminding me of myself when I'm trying to see if I can find a way to justify a pet theory. Unwarranted certainty in anything grates on me, and has come to grate on me more since I've been ill.

    But in terms of everyone agreeing it's irresponsible: If they were actually right and they knew the right way to pray then the good they would do by spreading the Word would outdo the harm done to the feelings of those left behind. Most religions at least have factions that regard themselves as the one true way, and in my experience their take on faith healing will often mirror this. In addition most religions have a way to explain why "the rain falls on the just and the unjust alike." Although I'm sure more than one person has wished that if God did nothing else at least He could indicate which way they were supposed to pray. Effing ineffability, eh?
     
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  16. Gingergrrl

    Gingergrrl Senior Member

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    It sounded like she said she was prayed for (by others) shortly before her health gradually started to improve vs. that she prayed for herself asking to be healed. I don't think she said she was cured or that she was telling others that they were praying wrong and this is why they were not cured (but I skimmed it quickly and could be wrong). It seemed pretty benign to me and I felt happy for her, especially being sick at such a young age and now being able to work (even if just six hours per week) and lead a support group to help others.
     
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  17. Hutan

    Hutan Senior Member

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    This video is only for the rabid atheists among you who don't mind Tim Minchin or serious swearing. If you think you might be offended, you probably will be, so don't watch it.


    Despite being firmly in the atheist camp I thought this article wasn't bad in terms of its impact on people with ME.

    I've seen much worse descriptions of the illness.

    I've spent half an hour trying to explain to myself why this article doesn't bother me that much, even though I agree with what you have written Jaime. Maybe, if you are an atheist with ME, you will just dismiss this claim that God did the healing but still get some hope that spontaneous significant improvements are possible. And if you are a religious person who believes God can choose to heal you, this story might give hope and in any case you have your faith to help you feel that there is a purpose to the suffering.

    There are plenty of stories about people attributing their recovery from all sorts of illnesses to God or gods. I don't think one more will affect anyone very much. I'm glad this young woman is no longer in a miserable situation.

    Good spotting @aimossy re the surname being the same as one of the authors of the recent Massey CFS study. That's interesting.
     
    Last edited: Aug 17, 2017
  18. user9876

    user9876 Senior Member

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    It was said in the panel discussion on the latest set of OMF talks
     
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  19. Solstice

    Solstice Senior Member

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    Still laughing about that song :D .
     
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  20. sarah darwins

    sarah darwins I told you I was ill

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    Wow. That is awesome!

    I've never quite been able to get into Tim Minchin before but that's, um, converted me, even if my Catholic upbringing had me crossing myself throughout!

    No clue how he remembers the words and keeps them straight. Talented fella, isn't he.
     
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