Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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You Gov question Do you think that ME, sometimes called Chronic Fatigue Syndrome, is a "real illness

Discussion in 'General ME/CFS News' started by elliepeabody, Oct 28, 2015.

  1. elliepeabody

    elliepeabody

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    Now they are joining in too!
    https://yougov.co.uk/#/

    There is a red box on the RHS for feedback if you want to comment on the question.
     
  2. snowathlete

    snowathlete

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    Inappropriate, cruel even, yet given the press today you can also argue the question is valid to understand how people's perceptions might have been warped by the propaganda.
     
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  3. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    that is appalling.
     
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  4. worldbackwards

    worldbackwards A unique snowflake

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    Interestingly enough, this isn't the first time they've asked the question.

    I found this from last summer, where it was smuggled in amongst a survey about other "problematic" illnesses (Dyslexia, ADHD, Anorexia, etc) in the US.

    http://cdn.yougov.com/cumulus_uploads/document/o4rdkrwznj/tabs_OPI_illness_20140618.pdf

    Back then we had 73% saying we were real and 10% not. Today in the UK, the 10% stayed steady but the yeses were down at 65-66%. Apparently a third of people admit to being racist in the UK, so it could be worse.

    I wonder if it was a bit worse today than it might of been because this was a live issue in the news and perhaps on other days it might have been more positive.
     
  5. elliepeabody

    elliepeabody

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    I have received an apology from You Gov today, and they have taken down the poll. This is what they have said:
    I've thanked them for their apology and suggested that if they wish to find out more about public attitudes towards ME and CFS they contact the MEA as a respected UK charity involved in research, education and training.

    Credit to You Gov for their response, it will be interesting to see how they move forward with this.
     
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  6. elliepeabody

    elliepeabody

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    Thanks for this, very interesting data from the US. Surprised that overall 9% think schizophrenia is not a medical condition and 20% that anorexia is not a medical condition.
     
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  7. Wildcat

    Wildcat

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  8. batteredoldbook

    batteredoldbook Senior Member

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    Thanks so much for doing this. Would've prefered that YouGov had tweeted something in public about it, that would have been an even better response but still, really glad to have the poll down.
     
  9. elliepeabody

    elliepeabody

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    Thanks
    This topic is also being discussed on the MEA Facebook page, it looks like quite a few people complained and got the same response that I did!
     
    batteredoldbook likes this.
  10. trails

    trails Senior Member

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    elliepeabody likes this.
  11. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    There are times when asking a question prompts people to view it as open for debate.

    We do not ask whether cancer is "real" because we know the answer.
     
    Snow Leopard and SOC like this.
  12. user9876

    user9876 Senior Member

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    I got this reply from them

     

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