New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
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You Can't Tell The Players Without A Scorecard

Discussion in 'General ME/CFS Discussion' started by Forbin, Nov 8, 2015.

  1. Forbin

    Forbin Senior Member

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    Being a U.S. citizen, I am sometimes confused by the many similar acronyms used in Britain (FINE, PACE, SMILE, etc..). I thought I would post their derivations for those who have wondered (like me) where these come from.

    NICE
    N
    ational
    Institute for Health and
    Care
    Excellence
    https://www.nice.org.uk/

    FINE
    F
    atigue
    Intervention by
    Nurses
    Evaluation
    http://www.ncbi.nlm.nih.gov/pubmed/20418251

    PACE*
    P
    acing, graded
    Activity, and
    Cognitive behaviour therapy: a randomised
    Evaluation
    http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60096-2/abstract

    Follow-up

    http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00317-X/abstract
    *[In addition to its relation to "pacing," "pace" is also a form of the Latin "pax" meaning "peace."]

    SMILE
    S
    pecialist
    Medical
    Intervention &
    Lightning [Process]
    Evaluation
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3879423/
    (ongoing trial?)
     
    Last edited: Nov 8, 2015
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  2. Gingergrrl

    Gingergrrl Senior Member

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    USA
    @Forbin Thanks for posting this and as another American, I was embarrassed to admit that I did not know what any of these abbreviations stood for (and I still have no idea who all the people are that are being discussed in the different threads!) I attempt to read them but get immediately lost and often don't know the good guys names from the bad guys names so I do not comment. I know there are extremely important things going on but I can't sort them out and need a translation card LOL. Am a bit relieved that I am not the only one!
     
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  3. halcyon

    halcyon Senior Member

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    Maybe it's just me but whoever came up with these acronyms has to be such a huge fan of Orwellian doublethink. They're just so perfectly contradictory.
     
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  4. worldbackwards

    worldbackwards A unique snowflake

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    Whilst you're about it, it would be nice to know what US residents are on about when referring to CFSAC, P2P, etc. I'm used to the UK bullshit, gimme the rest!
     
    Last edited: Nov 8, 2015
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  5. ahimsa

    ahimsa Senior Member

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    Does anyone know what PANTS stands for in the context of the discussion around PACE, etc.?

    I have seen it used a couple times. I think it may be a joke acronym making fun of all these problems but have not figured it out yet.

    @Gingergrrl, it's so easy to get confused by all this stuff. I only figured out the PACE acronym a couple years ago when Graham started doing his wonderful videos. They are short and make it easy to understand some of the the basic problems with PACE.

    You can find these videos on the MEAnalysis channel on youtube - https://www.youtube.com/user/MEAnalysis

    And here are links to articles discussing the videos here on the forums:

    http://phoenixrising.me/archives/25038
    http://phoenixrising.me/archives/26299
     
    Last edited: Nov 8, 2015
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  6. worldbackwards

    worldbackwards A unique snowflake

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    I think it's safe to say if we call something PANTS, it just means pants (although mocking the PACE acronym at the same time). Even our psychiatrists aren't so silly as to call their work pants.:)

    Watch someone pop up now and tell me this actually means something.
     
    Last edited: Nov 8, 2015
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  7. ahimsa

    ahimsa Senior Member

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    CFSAC - Chronic Fatigue Syndrome Action Committee

    The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS).

    see http://www.hhs.gov/advcomcfs/
     
  8. SOC

    SOC

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    And they had to stretch absurdly hard to make those Orwellian not-really-acronyms, PACE being the best:
    Shouldn't that be PGACBTE? Or PGCE? They just picked out whatever letters they felt like using. I bet I could use all those letters to come up with a better name if my brain was clearer than it is tonight.
     
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  9. worldbackwards

    worldbackwards A unique snowflake

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    Imagine going to those kind of lengths just to send an obscure massage to patients that they're depressed and lazy. I'm admiring the commitment.
     
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  10. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    USA
    Pa-gra-va-tion, Pagravation
    Pacing, graded
    Activity, and
    Cognitive behaviour therapy: a randomised
    Evaluation
     
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  11. SOC

    SOC

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    :thumbsup: I knew there was a better "acronym" in there somewhere!
     
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  12. Forbin

    Forbin Senior Member

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    I can't disagree. Not long ago, I embarrassed myself in a post by confusing the ME/CFS SEP at the NIH with the CFSAC.

    As mentioned above, I think it's the Orwellian pleasantness of the trial acronyms that is both creepy and also makes them hard to keep straight in one's mind.


    The one I find most concerning, however, is SMILE.

    In the context of evaluating children, the name of the trial seems inherently prejudicial.

    What child is going to want to self report failing something called the SMILE trial?

    Why not just call it the WINNER trial?
     
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  13. barbc56

    barbc56 Senior Member

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    And if they do will they get a frownie sticker?

    This reminds me of how some medications are named to suggest positive qualities such as Provigil or products that are also named as a selling tool. At the moment none come to mind, but I'm sure they're out there and will add them as/if I remember.:D

    Barb
     
  14. barbc56

    barbc56 Senior Member

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    The PACE trial used massage?:woot:

    I know, I know, auto correct can sometimes be our worse enema.

    Barb
     
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  15. Woolie

    Woolie Senior Member

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    SOC likes this.
  16. Forbin

    Forbin Senior Member

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  17. worldbackwards

    worldbackwards A unique snowflake

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    I mean, really. Why can't they just call it 'cheer up, you buggers' like everyone else.
     
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  18. SOC

    SOC

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    :rofl::rofl::rofl::rofl::rofl:
     
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