A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
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"You Can't Ignore ME NOW"

Discussion in 'Millions Missing Campaign' started by ahmo, Sep 29, 2016.

  1. ahmo

    ahmo Senior Member

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    Northcoast NSW, Australia
  2. taniaaust1

    taniaaust1

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    LOL no you especially cant like that. That's one way to get publicity. I just had to look up where that was taken, its London.
     
    Valentijn, AndyPR and Jennifer J like this.
  3. Skippa

    Skippa Anti-BS

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    Hehehe, finally the kind of advocacy I get get behind.
     
  4. Mrs Sowester

    Mrs Sowester BRING BACK KINA

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    She must have been cold.
     
    slysaint likes this.
  5. slysaint

    slysaint Senior Member

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    You should have been on hand with one of your curtains.
     
  6. Mrs Sowester

    Mrs Sowester BRING BACK KINA

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    I've had to give up on the curtains for the time being until this flare-up passes :( she could have borrowed half a roll of thermal, blackout curtain lining and finished the ensemble off nicely with a crystal beaded trim...
     
    eafw, Jennifer J, TiredSam and 2 others like this.
  7. AndyPandy

    AndyPandy Making the most of it

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  8. rebar

    rebar Senior Member

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    To win the media game you have to play it. I admire her courage!
     
    Izola, Jennifer J, mango and 2 others like this.
  9. mermaid

    mermaid Senior Member

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    The thing I puzzled over was how she managed not to topple over with the blindfold on, as if I shut my eyes and stand up, I think I would keel over.
     
    Jennifer J, mango, Old Bones and 2 others like this.
  10. Sidereal

    Sidereal Senior Member

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    Not everyone with ME has a positive Romberg sign. When I was severe I used to fall over if I closed my eyes while standing but not currently.
     
    Jennifer J, Kati and mermaid like this.
  11. mermaid

    mermaid Senior Member

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    Yes, I suppose I would wobble a lot but not fall over. Doing the blindfold thing made it doubly brave I felt as it increased the vulnerability of not knowing what others were doing around you.
     
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  12. Mrs Sowester

    Mrs Sowester BRING BACK KINA

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    And hold her placard up @mermaid. She has impressive determination and must be having considerable PEM for that.
    I'm not sure I'd have got the same reaction she did; I put on two stone and couldn't shave anywhere when I became housebound 6years ago and my wobbly bits haven't seen the sun in a very long time. I'd have ended up sitting in my wheelchair not knowing what to hide with my placard...
     
    Joh, Mij, Izola and 7 others like this.
  13. Sidereal

    Sidereal Senior Member

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    Impressive advocacy indeed.
     
    MEMum, Jennifer J, Thomas and 3 others like this.
  14. Roy S

    Roy S former DC ME/CFS lobbyist

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    AndyPandy, Valentijn, Izola and 6 others like this.
  15. daisybell

    daisybell Senior Member

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    Good on her indeed. I think I read that she had been told by a doctor that her ME was because she had body-image issues...
    I'm not that brave!
     

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