ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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YOU: Become a Media Mouthpiece for ME/CFS!

Discussion in 'Action Alerts and Advocacy' started by leela, Apr 12, 2011.

  1. leela

    leela Slow But Hopeful

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    Couchland, USA
    http://helpareporter.com/

    Articulate, knowledgeable patients/researchers/advocates may register at this website
    as experts so that when reporters are gearing up to do an article you can be contacted for an interview!

    Wouldn't it be great if a Rich Van K or a Lenny Jason, or a Pat Fero were interviewed more often than a Simon Wessely or a Myra McClure or a Dr. Contamination?

    The patient/advocate population has so many informed, intelligent, interested, up-to-date minds available. Let's get their voices out there! :victory:
     
  2. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    How do they know what to contact you about?

    GG
     
  3. leela

    leela Slow But Hopeful

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    GG

    I guess when you register, you then receive three sort of digest emails per day with reporters' queries. Anything that applies to you you can reply to with a brief summary of why you're an expert on that subject and what you have to offer.

    On the main page there is an audio link that explains in a bit more detail, but that's basically how it works. There's no charge to anybody.
     

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