Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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YOU: Become a Media Mouthpiece for ME/CFS!

Discussion in 'Action Alerts and Advocacy' started by leela, Apr 12, 2011.

  1. leela

    leela Slow But Hopeful

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    Couchland, USA
    http://helpareporter.com/

    Articulate, knowledgeable patients/researchers/advocates may register at this website
    as experts so that when reporters are gearing up to do an article you can be contacted for an interview!

    Wouldn't it be great if a Rich Van K or a Lenny Jason, or a Pat Fero were interviewed more often than a Simon Wessely or a Myra McClure or a Dr. Contamination?

    The patient/advocate population has so many informed, intelligent, interested, up-to-date minds available. Let's get their voices out there! :victory:
     
  2. *GG*

    *GG* Senior Member

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    Concord, NH
    How do they know what to contact you about?

    GG
     
  3. leela

    leela Slow But Hopeful

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    Couchland, USA
    GG

    I guess when you register, you then receive three sort of digest emails per day with reporters' queries. Anything that applies to you you can reply to with a brief summary of why you're an expert on that subject and what you have to offer.

    On the main page there is an audio link that explains in a bit more detail, but that's basically how it works. There's no charge to anybody.
     

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