1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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XMRV - (UK) Blood Transfusion and Tissue Transplantation - Guidelines

Discussion in 'XMRV Testing, Treatment and Transmission' started by Bob, Apr 7, 2014.

  1. Bob

    Bob

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    New UK guidelines re XMRV for blood transfusion and tissue transplantation.


    JPAC - Joint United Kingdom (UK) Blood Transfusion and Tissue Transplantation Services Professional Advisory Committee

    http://www.transfusionguidelines.org.uk/dsg/std/guidelines/xm001-xmrv

    XMRV

    Discretionary

    Donors who have been tested positive for XMRV, accept.

    Additional Information
    As there is no evidence that XMRV is implicated in human disease, a positive test is not a bar to donation.

    Reason for Change
    This is a new entry.
  2. SOC

    SOC Moderator and Senior Member

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    Let's hope they know what they're doing. (yeah, right) :rolleyes:
    maryb, Valentijn and Bob like this.
  3. Bob

    Bob

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    "Nothing to see here. Move on."
  4. alex3619

    alex3619 Senior Member

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    Yet what is the current guideline for CFS/ME as they call it in the UK?
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  5. barbc56

    barbc56 Senior Member

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    If you are sick, at least in the US, you can't donate blood.

    Whether you tested positive is a moot point, IMHO.:)
    justy and WillowJ like this.
  6. SOC

    SOC Moderator and Senior Member

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    Ah, but in the UK people with ME are only psychologically ill, not physically ill, right?:rolleyes: So that would be no barrier to blood or tissue donation. Sheesh
    maryb and Valentijn like this.
  7. alex3619

    alex3619 Senior Member

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    Yes @barbc56, its the same in Australia.
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  8. WillowJ

    WillowJ Senior Member

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    pretty sure the question is meant to be "Feeling healthy and well today?", which says nothing about eitiology
    Last edited: Apr 8, 2014
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  9. barbc56

    barbc56 Senior Member

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    How about, this? "When was the last time you felt well?" You say nothing until the question is asked again and you reply, "Shhhhhhhhh, I'm still counting backwards."

    Or something like that.:D


    Barb
    ggingues and justy like this.

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