I am a pariah. Bring on the XMRV test.
XMRV is going to liberate us, and save us from the angels of death.
I pray so. I pray for vailidation, and yes, XMRV testing may even gain us access to meds and to doctors.
Though I never expect to be well, fear I shall die of this illness, I crave a bit of respect, and I want the abuse to stop. My story is a lot like cold_taste_of_tears' story. And I weep in self pity to this day when I read the stories of people who have money to buy decent health care, to access concierge/boutique medicine. I wish these patients well. I know they suffer. And I know that their experiences are good indicators for the rest of us per what helps a bit and what does not. Someone has to go first. It usually IS the monied. I just want the same treatments. I am tired of being abused. I am tired of not even being able to find any doctor at all who feels a need to do more for me than prescribe psych meds ( which I do not tolerate), or give me a psych referral.
Once, I deliberately moved in with a man with HIV who needed a roommate. I did not know him, had never met him. But... we were both desperate. This was so I could live in a town that had a physician offering cleocin IVs and other supportive meds/treatments for CFIDS. I got better on his protocol...not well, but I felt a bit better. I could get out of bed.
Then, though my doctor had accepted Medicare initially, he suddenly dumped all his Medicare clients. Dumped...out on the street. No big money= no help. Period.
It was almost impossible to find another doctor who would accept me as a patient. I am a pariah. I am tired of this status in society.
Yeah. Bring on the XMRV test.