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ME/CFS and Beating the Clock
For Jody Smith, the ticking of a clock was enough at one time to chase her back to her bed. But with the passage of time, she has been able to reclaim her living room ...
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XMRV-SF Bay Area Folks

Discussion in 'XMRV Testing, Treatment and Transmission' started by Navid, Dec 4, 2009.

  1. starryeyes

    starryeyes Senior Member

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    My doctor is Dr. Barbara Bishop in San Francisco. Just Google her. She went to a CFS training seminar in the 1980s by Cheney and Peterson. She's probably willing to do what she can but I think you'd have to show her your research and ask for specific drugs. At least that's how it was with Valcyte but she's very good. :)
  2. Navid

    Navid Senior Member

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    teejkay

    have you seen or spoken with her since xmrv announcement. if so, what is her viewpoint...if you don't mind sharing.

    i spoke w/ south bay cfids doc yesterday who casts some doubt on the whole thing....this is all hearsay, but he says vip lab where they are doing xmrv testing is a former mouse testing laboratory...uh-oh.

    but w/the announcement about the govt's concern over the safety of blood supply there must be some validity to the xmrv finding

    waiting is the hardest part.

    thanks, lisa
  3. fresh_eyes

    fresh_eyes happy to be here

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    I remember Peterson addressing this at some length at the CFSAC, why it couldn't be lab contamination. I didn't really get it, but I think it'd pretty much impossible. (And I agree, the blood folks are certainly taking it seriously - surely contamination is the first thing the rule out.)
  4. starryeyes

    starryeyes Senior Member

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    I like how you wrote your Sig line fresh_eyes.

    Lisa, no I haven't seen her. I'm very bedridden so getting out is super hard for me. I'm planning on waiting until they make the antibody test available to us as well so I only have to do it once.

    That's too bad the CFS Specialist you saw doesn't think XMRV is a major discovery. Strange. That's too ironic that VIP labs was a former mouse testing laboratory but remember that they are also getting Negatives.

    Also, was that the same lab that XMRV was discovered in in 2006? Or the same lab Mikovits used when she found it in PWC? And also, 2 other labs confirmed the findings right? The NCI and I forget the other one.
  5. fresh_eyes

    fresh_eyes happy to be here

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    :) Thanks, teej.
  6. Navid

    Navid Senior Member

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    teejkay

    sorry to hear you so bedridden...hope you feel even just a teensy bit better soon : )

    i don't think the dr meant to be a downer...just putting some perspective on things. he felt the discovery/announcement was a good thing regardless...because it has/will raised awareness and put more research and money into cfid's.

    don't know anymore about the lab...just that little bit he said.

    it's weird that there has been such a drought of information from wip/mikovits since the initial hoopla.

    i personally like even little breadcrumbs of info to keep my spirit and hope up.

    warmest regards, lisa

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