1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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XMRV Prevalence and CFS Definition Poll

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Cort, May 31, 2010.

?

I think XMRV Will Be Found In

  1. Most people (75%) who fit the Canadian Criteria

    24 vote(s)
    51.1%
  2. Many people (35-75%) who fit the Canadian Criteria

    15 vote(s)
    31.9%
  3. Some people (1-35%) who fit the Canadian Criteria

    3 vote(s)
    6.4%
  4. Most people (75%) who fit the Fukuda (International) Definition

    2 vote(s)
    4.3%
  5. Many people (35-75%) who fit the Fukuda (International) Definition

    13 vote(s)
    27.7%
  6. Some people (1-35%) who fit the Fukuda (International) Definition

    10 vote(s)
    21.3%
  7. Most people (75%) who fit the Oxford or Empirical Definition

    0 vote(s)
    0.0%
  8. Many people (35-50%) who fit the Oxford or Empirical Definition

    1 vote(s)
    2.1%
  9. Some people (1-35%) who fit the Oxford or Empirical Definition

    17 vote(s)
    36.2%
  10. I do not think XMRV will be found

    4 vote(s)
    8.5%
Multiple votes are allowed.
  1. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    435
    Raleigh, NC
    What effect do you think will who falls into what definition will have their chances of testing positive for XMRV? Take the poll!

    You can answer multiple times - one for each definition. Oxford and Empirical Definitions were merged because we only have 10 allowable slots. Oxford is better known but the CDC has tested Empirical Definition patients and that study will reportedly be out soon - hence my throwing Empirical in there.
  2. Mark

    Mark Acting CEO

    Messages:
    4,513
    Likes:
    1,929
    Sofa, UK
    bumping...
  3. bullybeef

    bullybeef Senior Member

    Messages:
    476
    Likes:
    44
    North West, England, UK
    Called me pedantic (I’ve been called much worse) but are these test based on, at the very least, a serology test? Obviously, this antibody would improve the positive percentages.
  4. Mark

    Mark Acting CEO

    Messages:
    4,513
    Likes:
    1,929
    Sofa, UK
    I would assume it means..."will eventually be found to have XMRV, by whatever test".
  5. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,847
    Likes:
    4,750
    Sth Australia
    I will be truely surprised if im found not to have XMRV as prostate cancer (along with CFS and fibromyalgia) runs in both sides of my family with both my grandparents dying from prostate cancer). Im wondering how many others have a prostate cancer connection in family possibly due to XMRV. Maybe some of us are actually born affected with the virus?..... but if so why does it then flare up?? or whatever its doing at some point of our lives and making us very sick at that point? i had 2 occassions in my childhood looking back where obviously something was wrong.. then seriously sick with EBV when a young teen, but why then did it take me 10 yrs or so later to get very sick? Maybe something genetically wrong in the first place which predisposed us to it??? There seems to me to be something else in this picture on top of just the possible XMRV answer.
  6. Snow Leopard

    Snow Leopard Senior Member

    Messages:
    2,261
    Likes:
    1,658
    Australia
    Count me in for a 1-35% prediction.

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