Discussion in 'XMRV Testing, Treatment and Transmission' started by leaves, Jan 14, 2010.
Vaccinations in red have been added.
Awesome Job Kim!! This Survey looks fantastic. What great participation we have here. :victory::sofa:
I changed the column values - does this make sense?
Choose: [Positive IgM] [High levels of antibodies IgG out of range] [Past infection] [Negative] [Inconclusive] [Not tested]
Kim and gang--I take a few days off (more or less) and return to find this! You guys are unbelievable! I think I will have to get tested just so I can play too!
But in the last version I looked at (I omitted a few pages, someone may already have caught this) in Section 28 you have Hypertension (I am one of the few who have this) but not Hypotension, which I think many of you do have. So please put this in, if not already done. But wow! WOW! Chris
Entamoeba species added.
Don't know where to put white spots on fingernails.
Is there a line that we could put in the Welcome message that would say this?
Hey Chris! We're making 3 versions so that everyone can play. You'll be able to take the -Not Tested- version.
I added Hypotension. Thx.
Added puberty, menopause, and chemical exposure, and struck by lightening
Added -Loss of appetite- and -excessive hunger-
Added Daytime urinary frequency, deterioration of finger pads, inability to perspire, hypermobility, alert not insomnia, sulfur foods, neurological tests
Made 2 questions - separate flu feeling from hangover feeling
I added dx. by MD to the question.
THe diagnoses question now gives the option for Physician or Self Diagnosis
Kim, could you add a link to the poll in the title of this thread, i have to keep looking through the thread to find links,
I'm all but caught up with the suggestions. I need to take a break.
Here's the XMRV POSITIVE SURVEY (BETA)
ETA: I still haven't added the suggestions that were written in the OTHER SYMPTOMS boxes when you took the survey. Hang in there.
re: medication side effects
in the welcome you could add something like this;
For this survey, consider a symptom as Current if it has occured within the last three months. Past symptoms are any that you experienced prior to three months ago. Symptom will not refer to side effects of medication, or symptoms related to a transient infection (ie: nausea that is related specifically to a 24 hr flu)
Bravo julius, you are coming through today. This is so helpful!!
Good to hear,
I actually have Asperger syndrome as well as cfs. So i often don't know if I'm being a help or a hindrance, I don't pick up on the 'cues'. I'm glad to hear that i'm helping in this case.
Thanks for letting us know about your Aspie-ness. You've been tremendously helpful with this survey - keeping it pumping along when I start to fizzle out.
I'm going to start a new thread to get feedback from the general population here. I will eventually merge it with this thread, but I wanted to have a fresh start with making changes to the current version.
Separate names with a comma.