1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
Discuss the article on the Forums.

XMRV Patent application Judy A. Mikovits Francis W. Ruscetti San

Discussion in 'XMRV Research and Replication Studies' started by pollycbr125, Jul 4, 2010.

  1. eric_s

    eric_s Senior Member

    Messages:
    1,925
    Likes:
    73
    Switzerland/Spain (Valencia)
    Those patent applications are much too complicated for me to really understand but i would be interested in this: Is there some overlap between the 2?

    I hope they won't start cannibalizing each other now, if they smell the money.

    It would not stop progress, but it would not be nice.
     
  2. CBS

    CBS Senior Member

    Messages:
    1,379
    Likes:
    313
    Western US
    Bullybeef,

    No offense but if this is out there (and we know that it is to some degree), how else do you think they're going to find this in our brains? I'd rather that than a biopsy. Still, there are pathogens that hide out in brain tissue and don't readily circulate (toxoplasmosis). Don't think it's not there.

    I'm wondering if the same methods would be used to look in prostate and lymphatic tissue.
     
  3. CBS

    CBS Senior Member

    Messages:
    1,379
    Likes:
    313
    Western US
    I can hear the howls from the XMRV-Prostate Cancer Deniers now:

    "Bob Silverman is Exploiting Prostate Cancer Patients! We must stop that unethical SOB!"

    "The Cleveland Clinic is nothing but a front for it's greedy founders and their efforts to separate these vulnerable, desperate, naive patients from their money!*"

    * Honest, we're just trying to protect you poor ignorant prostate cancer patients from yourselves.
     
  4. bullybeef

    bullybeef Senior Member

    Messages:
    476
    Likes:
    44
    North West, England, UK
    Sorry, I should have explained my reaction CBS. I have recently wondered whether a spinal tap would show anything. I find it fascinating that in the future this diagnostic method could show our XMRV status.
     
  5. CBS

    CBS Senior Member

    Messages:
    1,379
    Likes:
    313
    Western US
    Bullybeef,

    I'm just having a little fun with this. I've suspected for a very long time that they would one day be looking in our brains. I've been arguing with doc over 'odd' MRI findings since 1995 (I'll spare you the details - feel free to PM). It's going to be interesting to watch and see what is found once they actually start looking.

    Take good care and I do hope I didn't offend.
     
  6. judderwocky

    judderwocky Senior Member

    Messages:
    327
    Likes:
    3
    labs patent things all the time... if they had been at a university this would have probably been patented already... my guess is they had to work it out between three labs first ... and usually that thing is covered in the collaboration agreements between universities.....
    *i think*

    a patent shouldn't be considered suspicious
     
  7. CBS

    CBS Senior Member

    Messages:
    1,379
    Likes:
    313
    Western US
    Apparently my attempts at satire are falling flat this morning. I'll stop.
     
  8. Lesley

    Lesley Senior Member

    Messages:
    188
    Likes:
    0
    Southeastern US
    CBS - Satire is always risky with this crowd, but I got it and it was hilarious!
     
  9. Lynn

    Lynn Senior Member

    Messages:
    303
    Likes:
    54
    CBS,

    I thought it was funny as well. Unfortunately I knew it would bring trouble from some who didn't get that it was a joke from their first reading.

    Lynn
     
  10. Lesley

    Lesley Senior Member

    Messages:
    188
    Likes:
    0
    Southeastern US
    I think that they needed to get the patent application filed before VIP Dx began offering the new test. Hopefully, now that the application has been filed, the testing should be available.
     
  11. bullybeef

    bullybeef Senior Member

    Messages:
    476
    Likes:
    44
    North West, England, UK
    Of course not, CBS, I took it in good humour....I wouldn't put it past Wessely, Reeves and Co to order brains biopsies on all of us, and send us away with a lobotomy free of charge so we don't sue!!!! :tear:
     
  12. Navid

    Navid Senior Member

    Messages:
    411
    Likes:
    58
    cbs: i got your satire, please don't stop it's very funny and we'll only cry if we can't laugh:D:D
     
  13. George

    George waitin' fer rabbits

    Messages:
    846
    Likes:
    44
    South Texas
    I thought it was 4 paws up funny CBS. ( big grins)
     
  14. SOC

    SOC Senior Member

    Messages:
    5,369
    Likes:
    6,493
    USA
    [my bolding]

    :eek: and :eek::eek:

    My FIL died of aggressive prostate cancer 25 (?) years ago. My MIL died of "atypical ALS" about a year before my daughter and I came down with ME/CFS. And we've got lymphoma on my side of the family......

    :eek: [running off to hide under the blankets]
     
  15. alex3619

    alex3619 Senior Member

    Messages:
    7,727
    Likes:
    12,658
    Logan, Queensland, Australia
    Hi SickofCFS

    I wouldn't read this as anything definite yet, its from the patent application, and may be more from suspicion or hypothesis than anything solid. They just want to cover all their options in the patent. On the other hand, should this be published as a definite finding later dont be surprised. It also gives us several more patient groups we should consider contacting.

    Bye
    Alex


     
  16. SOC

    SOC Senior Member

    Messages:
    5,369
    Likes:
    6,493
    USA
    I'm not, really. :D It's just my own little not-very-funny grim humor.
     
  17. julius

    julius Watchoo lookin' at?

    Messages:
    785
    Likes:
    5
    Canada
    I see why Einstein quit his job as a patent clerk. It was easier to figure out the fabric of the universe than to understand one of these applications.
     
  18. natasa778

    natasa778 Senior Member

    Messages:
    1,495
    Likes:
    1,369
    London UK
    :tear::tear::tear:

    he actually came up with his best stuff WHILE working as a patent clerk!! I guess he flexed his brain muscles so well by doing patent stuff that the Relativity theory was easy-peasy. It could have been his little Sudoku, a way of relaxing :D
     
  19. usedtobeperkytina

    usedtobeperkytina Senior Member

    Messages:
    1,395
    Likes:
    222
    Clay, Alabama
    Controversy, is there any controversy over the Prostate Cancer claims of linkage with XMRV. I mean, the association is in the 20-30% and is anyone claiming foul on the studies and claims afterward?

    Or is it just us that have to deal with this mess? Same testing method, but much higher association.

    Tina
     
  20. garcia

    garcia Aristocrat Extraordinaire

    Messages:
    937
    Likes:
    105
    London, UK
    I agree Tina. It is double-standards pure and simple.

    If you listen to Myra McClure's interview she did with Australian ABC radio, she proves the case for XMRV involvement in prostate cancer, and de facto proves the case for XMRV involvement in ME/CFS. All you have to do is replace one disease name with the other. The arguments apply verbatim. I suggest this is the reason why Myra McClure made a swift exit from CFS-research because effectively she painted herself ("I'm 10,000 percent confident") into a corner and was too proud/stubborn to back down.
     

See more popular forum discussions.

Share This Page