Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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XMRV negative by PCR from Redlabs in Belgium

Discussion in 'XMRV Testing, Treatment and Transmission' started by filfla4, Jan 18, 2011.

  1. filfla4

    filfla4 Senior Member

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    I have just been informed that I'm XMRV negative by PCR. My serology test is not back yet as apparently this is done in the States and takes several months.

    Does anyone know what this means? Could it be a false negative?

    I have an appointment with KDM in Brussels next week - I can't wait for an explanation! I would consider myself to be 40-50 on the Bell disability scale.

    I would appreciate any thoughts on this. I'm not sure what to make of it. :(

    Thanks!
     
  2. maryb

    maryb iherb code TAK122

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    UK
    Sorry to hear you haven't got all your results, the waiting is terrible I know, it seems its all we do, just have to get to the appt and take it from there I suppose:( Is it your first appt?
     
  3. filfla4

    filfla4 Senior Member

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    Thanks maryb. No this is my second. I had my first appt in November when all the tests were carried out but I haven't started any treatment yet. So hopefully next week!!!!!
     
  4. garcia

    garcia Aristocrat Extraordinaire

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    London, UK
    PCR is not a good test to have (which is why VIP have stopped offering it). It is very high in false negatives. I would have the culture test done instead if possible.
     
  5. filfla4

    filfla4 Senior Member

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    Apologies, I just went through my papers again - the test was in fact culture and pcr. Since I was only given the result verbally on the phone, I'd like to see everything in print, hopefully in the next few days.
     

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