Home care is the theme for Severe ME Day on August 8th
Why should home care be the theme on Understanding and Remembrance Day for Severe ME on August 8? Helen Brownlie of the 25% ME Group has written an explanation for Phoenix Rising ...
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XMRV International Advocacy Strategy: Help us start a Facebook page?

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by parvofighter, Dec 21, 2009.

  1. kim500

    kim500 Guest

    XMRV Action Network

    I vote for 'XMRV Action Network'.

    Trying saying it out loud. Great alliteration, sounds sharp and strong.
     
  2. leelaplay

    leelaplay member

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    hi all

    I agree with txfriend and FE about the petition and professionalism. It's so exciting that it's up and going, but it is a work in progress.

    Know of anyone who would want to take on dealing with the petition? (no pressure, really!:p)

    Hi Kim500 - welcome to the forums. Do I detect the ear of a PR person there?
     
  3. leelaplay

    leelaplay member

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    I just watched the starbucks, All you Need is Love AIDS fund-raising campaign that Wayne posted on another thread. I loved it.

    And I wondered if it might spark some fund-raining (for WPI, CAA, Phoenix Rising, good research .... maybe) ideas.
     
  4. txfriend

    txfriend

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    hi all...
    I did email the author of the video/blog and he immediately wrote back, saying
    he did make a mistake, and he was getting the "CAA written" erroneous info
    taken off his blog, but that it would take a few days. Very kind person, very
    understanding of the critique. Very amenable to corrections to his blog.
     
  5. leelaplay

    leelaplay member

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    thanks txfriend - well done!
     

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