1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Join the National PR Campaign for ME: Power to the Patient (P2tP)
Have you had enough of all the neglect and abuse of ME/CFS patients? Gabby Klein says now is the time for a National PR Campaign for ME/CFS to impress a change. Join the Patient Revolution to restore power to ME patients ...
Discuss the article on the Forums.

XMRV CFS UK study #II

Discussion in 'XMRV Research and Replication Studies' started by Orla, Feb 15, 2010.

  1. usedtobeperkytina

    usedtobeperkytina Senior Member

    Messages:
    1,384
    Likes:
    186
    Clay, Alabama
    yes, the multiple systems involved points to CNS dysfunction or retrovirus.

    Higher rate of lymphomas, as reported by Peterson, points to retrovirus. The reactivation of latent viruses points to retrovirus or CNS / immune system problem.

    Tina
     
  2. Gerwyn

    Gerwyn Guest

    your ability to find relevant studies is quite amazing
     
  3. Gemini

    Gemini Senior Member

    Messages:
    397
    Likes:
    296
    any way to bring these studies/findings to the attention of the Emory Univ XMRV macaque researchers?
     
  4. dannybex

    dannybex Senior Member

    Messages:
    2,247
    Likes:
    562
    Seattle
    So they've asked repeated questions, and aren't getting any answers? Doesn't anyone else find this somewhat alarming?:confused:
     
  5. ukxmrv

    ukxmrv Senior Member

    Messages:
    3,508
    Likes:
    2,042
    London
    I've had replies for my questions. Plus a researcher I have been talking to has had answers to his questions (seen the emails) so I assumed that this was an isolated problem or a mistake

    There is going to be a limit to what WPI can answer and how quickly.

    I wonder what their questions were. Dr Mikovits has been "saying" to other people so why not this one - is the problem a real one, a mistake or "hearsay"?
     
  6. natasa778

    natasa778 Senior Member

    Messages:
    1,451
    Likes:
    1,289
    London UK
    at least one of those 3 (?) questions has been answered by Judy M before, publicly, so don't see why she would be wasting time repeating the same thing... don't know about other two...
     
  7. dannybex

    dannybex Senior Member

    Messages:
    2,247
    Likes:
    562
    Seattle
    Perhaps 'alarming' was too strong of a word...but it's puzzling to say the least.

    This came from Cort, so I woudn't call it hearsay. I know she's probasbly swamped with emails/calls...not to mention a ton of work, so hopefully this person/persons will get their answers soon.

    d.
     
  8. ukxmrv

    ukxmrv Senior Member

    Messages:
    3,508
    Likes:
    2,042
    London
    D

    The person may be misleading Cort or not telling the whole story. We simply do niot know. That's why I said "Hearsay" - not on Cort but on the person reporting this to him. Could be all sorts of things. Maybe they have a history, met before and hate one another or WPI is sick spending too much time on one person. I've seen people make similar complaints and then discovered the whole story afterwards. Now I don't tend to spend too much time on these fior that reason.
     
  9. free at last

    free at last Senior Member

    Messages:
    617
    Likes:
    124
    More should be discussed about the known uk positives

    I know its been mentioned a few times about the small group of known uk positive CFS ME sufferes, But first it always seems to be talked about like hearsay or guessing, can anyone with utmost certainty say there has been 20 so far ( i saw this figure here ) tested positive in the uk.

    Because if thats fact, one thing seems certain, unless this group that privately paid for the testing ( 50% of Sufferes tested was quoted positive ) is somehow a very select group completely outside this new uk failed study cohort ( seems a bit unlikely especially at 50% positve rates ) then 1 xmrv is in the UK FACT. 2 CFS ME patients are indeed much more heavily infected than healthy controls in the UK FACT. 3 why oh why is the new uk study with DR kerr onboard completly at odds with this figure ? Either somethings wrong with the WPI testing, or somethings wrong with the new UK study, be it either cohort ( think thats a bit unlikely ) or testing failings ? ( possibly both ? ) My moneys on the WPI, cant help but trust DR j. Seems so confident. I really think she cares about this issue and the patients themselves, Not saying others dont, But its a gut reaction thing. Im sure shes fighting for us like no other has before, ( except a select few and we know who they are ) The new uk study by the WPI will shed more light on these questions for sure, if the 50% figure holds up with a much larger group, Then what, what will the uk goverment and all the specialists in this country make of such a finding ? Seems unlikely that the WPI will find nothing, if they have already found 20 out of 40 UK CFS ME patients are infected,

    Can anyone with utmost certainty confirm this figure, as from where i sit at the moment it offers real hope that XMRV maybe the cause or part of the cause of the illness. And refutes the 2 failed uk studys, by the sheer 50% positive rates being detected in this country,

    One last thing why is Dr Kerr not interested in these points im making, Wouldnt he be ? shouldnt he be ? If i was him i would want to lnow why these results are at odds with a study with hes name in it ? Still waithing myself here for info when to give a sample for the new WPI uk study. I will certainly tell this group my result when i get it, have no idea when that could be though.
     
  10. Gerwyn

    Gerwyn Guest

    anything from a third party source is heresay
     
  11. Gerwyn

    Gerwyn Guest

    infuenza ebolla mad cow multiple sclerosis parkinsons encephalopathy mitochondrial dysfunction you can cause neuroimmunoendocrine symptoms by deleting three base sequences in mitochondrial dna
     

See more popular forum discussions.

Share This Page