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XIFAXAN

Discussion in 'XMRV Testing, Treatment and Transmission' started by Daffodil, Apr 10, 2012.

  1. Daffodil

    Daffodil Senior Member

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    hi all. i have been hearing more and more about antibiotic Xifaxan helping brain fog in many diseases, including CFS.

    has anyone out there tried it?

    Thanks!
  2. john66

    john66 Senior Member

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    Hi Daffodil, I used it last summer for IBS issues. I wouldnt write home about it. Made my fingers and toes numb while using it. You need to take 3x per day. I think the bottle of 60 was close to 2K, so it is crazy expensive.
  3. maryb

    maryb iherb code TAK122

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    I took it for 10 days at New Year, I developed a massive allergy soon after (within 3 days) to melon and only just come back from that, so did it do anything for me? No. But sometimes things get mixed up with this crazy illness and the allergic reaction may have had nothing to do with my body's response to Xifaxan.
  4. globalpilot

    globalpilot Senior Member

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    I tried it on a diagnostic basis as I do have a LOT of bloating. It did absolutely nothing. Some have had really good results, although many do seem to be temporary.
  5. Daffodil

    Daffodil Senior Member

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    hmmm. thanks, guys.
  6. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I think to have good results you need to have a gut/stool test that shows you have a condition-infection which xifaxin is known to help.

    Also, it is available generic, but not in the US. I got mine from a Canadian pharmacy and yes, it did help a lot--however if it helps with brain fog, it is because the brain fog is coming from gut-related issues, as this med is only effective in the gut.

    Sushi
  7. Daffodil

    Daffodil Senior Member

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    thanks Sushi. on the internet, i have found that it helped many hep c patients with their brain fog / encephalopathy that they get with liver disease.

    my fog is pretty much the worse its ever been right now. I am going to get the NK cell function test soon.

    xoxoxoxo
  8. drex13

    drex13 Senior Member

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    Worst week of my life. Make that worst 4-5 days, because I couldn't make it a week on Xifaxan. Terrible diahrrea, not fun.
  9. Daffodil

    Daffodil Senior Member

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    nothing about this disease can be simple, can it
  10. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    http://www.magicpharma.com/advanced...sid=85e6a4a8205db6085ebc133ca41f1d10&x=13&y=9
    they seem to be on holidays at the moment but taking orders at the end of april.
    Flagyl is another abx that is used for similar infections to xifaxan, i have found it help in generalised symptoms in the past.
    I think we are possibly full of opportunistic infections, we need one pill that has an av, arv, abx, antifungal, immune modulator all in one. It would be a dam big pill??
  11. Daffodil

    Daffodil Senior Member

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    i dont get it every friggin leaky gut test i have is negative. everything is NEGATIVE. ARGHHHHHHH how can i treat anything
  12. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Have you had an anaerobic gut test? They are quite different in what they show.

    Sushi
  13. Daffodil

    Daffodil Senior Member

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    hi sushi. i have been looking at these tests. one is the urinary indican test:

    http://biocenterlab.org/tests/urine/indican.shtml

    there is a metametix test:

    http://www.metametrix.com/test-menu/profiles/gastrointestinal-function/dna-stool-analysis-gi-effects


    and some others. i think i will ask for the metametrix one. i am not sure my doctor will be willing to set up an acct with this company; i hope so.

    its been 4 1/2 days since my 7th GcMAF shot and i am in the midst of a major cytokine storm. very bad. i took 0.15.

    thanks for all your help:)
    xoxox
  14. globalpilot

    globalpilot Senior Member

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    I just did themetametrix test . I ordered it through directlabs w/o a doctors order.

  15. Daffodil

    Daffodil Senior Member

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    hi global thanks. did you get the complete stool profile test? what did it show, may i ask?

    i will have to go througha doc since i am in canada..

    thanks
    xoxo
  16. john66

    john66 Senior Member

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    One med that helped me more with bowel issues is buscopan, which I got in Greece last year. I think it is OTC in a lot of countries. Maybe try glutamine before taking out the big guns??? Since I tried GcMAF, terrible headaches, weight gain and lots of other issues that just dont make any sense. I admire you for keeping up with it so far, no way I could keep it going. J
  17. globalpilot

    globalpilot Senior Member

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    I just sent the sample in last week. I'll know next week hopefully.

  18. globalpilot

    globalpilot Senior Member

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    It looks like its an antispasmodic. Is that what it helped you with ?

  19. Daffodil

    Daffodil Senior Member

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    global...did u order the complete stool profile?

    tx
  20. globalpilot

    globalpilot Senior Member

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    I did Daffodil, to get the information on the pancreatic enzyme activity and some other items. It was kinda pricey. They have both the complete and also the one that tests for microbes only.

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