Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
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Xifaxan - big problems

Discussion in 'The Gut: De Meirleir & Maes; H2S; Leaky Gut' started by Daffodil, May 5, 2013.

  1. Daffodil

    Daffodil Senior Member

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    Hi all. I once felt better for a week after taking Xifaxan, so my doc wanted me to try a higher dose for a longer period of time (2 weeks).

    This time, I just got worse and worse, and stayed that way. I am currently going through hell with INTENSE inflammation, chest pain, etc. It has been about 2 weeks since I stopped the drug.

    Did anyone get worse with Xifaxan and if so, how long did it last before you were back to prior levels of functioning?

    Thanks a lot
    Sue
     
  2. maryb

    maryb iherb code TAK122

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    I didn't get worse daff - but I didn't feel well whilst I was on it and was glad to finish the week's course.
    I don't think sometimes more is better - the week you were on it probably did what was needed?
    Have you started probiotics - I used VSL#3
    Its a pretty powerful a/biotic in the gut kills everything.
     
  3. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I agree about the dose, that could have been the problem...and also about the probiotic--you would need a very powerful one now daily. VSL#3 has 450 billion micro-organisms per packet. But that might not be the particular formula you need.

    Sushi
     
  4. maryb

    maryb iherb code TAK122

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    I know Sushi thats the problem, if you don't have the stool test before the xifaxan to identify which good bacteria you need then its trial and error to find one that suits. Some people are made worse, as I have been when using them.
     

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