Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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WSJ's blog: The AABB Makes it Official: CFS Patients Shouldnt Give Blood

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Lynn, Jun 19, 2010.

  1. Lynn

    Lynn Senior Member

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  2. V99

    V99

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    UK
    Thanks tloyd.
     
  3. JT1024

    JT1024 Senior Member

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    Massachusetts
    There were a number of comments to the WSJ blog article. One was by a physician (see below)

    1:54 pm June 19, 2010
    Susan Goodner wrote:

    Does this mean that those of us who have been diagnosed with Chronic Fatigue Syndrome and have developed some of its complications such as measurable deficiencies in immune function and low blood pressure that appears related to an immune defect and can result in fainting are being regarded as folks who have an actual disease instead of like neurotics? I loved my job as a family doctor and cared deeply about my patients. Kids I delivered are still graduating from the local high schools. I have not been able to practice for over 2 years due to this invisible disease. Please allow all those diagnosed with the dignity afforded to those disabled by a chronic illness, whether you understand it or not.


    There was another comment by a "JT" that wasn't me!

    ~ JT
     

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