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WSJ on CFS: "Wave of New Disabilities Swamps School Budgets"

Discussion in 'General ME/CFS News' started by slayadragon, Sep 17, 2011.

  1. slayadragon

    slayadragon Senior Member

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    This is, I think, a very good and very important article by Amy Dockser Marcus in the WSJ, about how schools are dealing with students with CFS.

    Unfortunately, it's on restricted access and so people are going to have a hard time taking a look at it if they don't subscribe to the WSJ. If folks want to see it, let me know privately and I will forward it to you.

    http://online.wsj.com/article/SB10001424053111904103404576558730329067142.html
     
  2. Boule de feu

    Boule de feu Senior Member

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    Before I was ill, i had no clue this illness was around. It's only after I got sick that i realized that some of my students also had a "mono-like flu" type of illness. In each case, doctors could not figure out what was wrong with them. Unfortunately, I had to leave my job and could not help any of my students. I feel sorry for that.
     
  3. floydguy

    floydguy Senior Member

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    You would think there would be a tipping point where somebody high up would decide that it can't be swept under the rug any longer. I know several teens/young adults who have Lyme/CFS and it's an awful limbo for everyone. They are ineligible for normal disability and their poor parents do everything they can but as we all know there is not a whole lot that can be done.
     
  4. Esther12

    Esther12 Senior Member

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    Outstanding comment from Maggie Warren:

     
  5. paddygirl

    paddygirl Senior Member

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    Once again the facts get in the way of these awful statements.

    The reality is that many of us continue to work even when it's not in our best interests. No choice really. My days off and afternoons are spent in bed to keep well enough to be able to continue.

    My workmates have got used to my lying in a chair unable to stand and last week I spent 2 hours on the floor of our office with coats as a pillow as I couldn't drive home. What they don't understand is that this happens at home all the time.

    My boss came down with ME/FM after me and has been off work for 10 months now, her previously good standard of living has taken a nosedive and she is dependent on her husband. Who would choose this?

    I'm constantly been advised not to work but with a mortgage double my possible monthly disability payment, my workmates will continue to see our hidden reality.

    Without WPI and their like, life would be hopeless.
     
  6. slayadragon

    slayadragon Senior Member

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    Here's my comment. If folks would be willing to "Recommend" it, perhaps other readers will be more willing to look at the link.

    Best, Lisa

    *

    http://online.wsj.com/article/SB100...2.html#articleTabs=comments&commentId=3063756

    It is true that the government has not yet officially accepted a laboratory test to diagnose CFS and that there is not yet consensus on the cause of the disease.

    This does not mean that there is not abundant evidence in medical literature that CFS is a severe, physiological disease.

    Before anyone else here makes a comment about how CFS sufferers are lazy or psychologically disturbed, I would like to request that they take at least a cursory look at the following. It has very brief summaries of more than 600 peer-reviewed articles from the medical literature, confirming a wide variety of specific medical abnormalities in the disease.

    www dot tinyurl dot com /CFS-medical-abnormalities

    (Sorry to have to spell this out. I had trouble with the WSJ spam filter.)

    It is unfair to attack people (and especially children) who are ill out of ignorance, without knowing the facts.

    If, after looking at this literature, folks feel that attacking people with CFS is the right thing to do, then by all means go ahead.

    Cordially,

    Lisa Petrison, Ph.D.
     
    Ocean likes this.
  7. Dreambirdie

    Dreambirdie work in progress

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    MAGGIE WARREN'S COMMENT is so disgusting and predictable:

    "Chronic Fatigue syndrome is a bunch of cr@p. The people who "have it" will defend it till the end, to be validated as "sick human beings" and of course to get disability.

    Fibromyalgia is a bunch of cr@p. But it is good for us doctors because it is codeword for "this is a crazy patient". "


    This unfortunately is what modern medicine is all about. So glad I steer clear of doctors.
     
  8. jimells

    jimells Senior Member

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    'MAGGIE WARREN' is the name of nearly every doctor I've had to deal with for the past eight years. Maybe the next time I see a doctor, I should start with, "Is your name MAGGIE WARREN?"
     
  9. Boule de feu

    Boule de feu Senior Member

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    Someone really said that???
    I hope this person will get CFS and understand what we are going through... :-(
     
    ggingues likes this.
  10. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    Wow, it looks like people who subscribe to WSJ, or at least comment on the articles are less mature than your average 4chan poster.

    I made a comment.

    http://online.wsj.com/article/SB100...2.html#articleTabs=comments&commentId=3063756
     
    Roy S likes this.
  11. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    And if she'd said that about a person based on race or religion she'd get sued and lose her medicla licence

    alas we didn't do an honest job 70 years ago, because of political BS, and execute the thousands of doctors who whole heartedly enjoyed murdering their patients, and left that as a memorial to the bigotted "doctors" of today as a warning.

    Someone do us all a favour and post a link to Sophia Mirza's death certificate on that site, explain THAT one, you sick, sociopahtic, small-minded, pathetic scumbags!
     
  12. Boule de feu

    Boule de feu Senior Member

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    I've read many of the comments and I think I have acquired a new illness... I'm depressed! :-(
     
  13. markmc20001

    markmc20001 Guest

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    This comment was just plain EVIL.
     
    WillowJ likes this.
  14. Snow Leopard

    Snow Leopard Senior Member

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    Hi, I'm interested in reading the article. (or a summary)
     
  15. markmc20001

    markmc20001 Guest

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    OOOPS! possible misinterpretation. Thanks for pointing that out sickofcfs.

    :D

    Too much caffine and brainfrog today.

    All the propaganda lately makes me hit the roof, in case you haven't noticed.
     
  16. markmc20001

    markmc20001 Guest

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    I'm going to take a bath.

    [video=youtube;a33_lkYJm5g]http://www.youtube.com/watch?v=a33_lkYJm5g&feature=player_embedded#![/video]
     
  17. Snow Leopard

    Snow Leopard Senior Member

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    I've been reporting the most offensive (purely insulting) comments and 'recommending' the most sensible comments.
     
  18. WillowJ

    WillowJ Senior Member

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    btw, I "liked" markmc200001's edited post, not his first version. (I saw from the next couple of posts what was going on and that he'd taken back some words when he figured out what esther meant)

    the comment was evil, but I know esther12 was simply telling us about it and her "outstanding" was sarcastically meant
     
  19. Esther12

    Esther12 Senior Member

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    My fault too - I'm sure there are some people out there who do see such a comment as 'outstanding', and as that was my first post in this thread, I see how you could have got confused.
     
  20. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    Right!

    -------------------
     

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