Thank you Jodie for writing about your experiences. So much resonates with me. I lurk and read a lot here, frustrated at being unable to put down my thoughts and feelings and join in the conversations. I am grieving the loss of my faculties, as a biological researcher my work was my mind, but it is all trapped inside unable to be expressed coherently. I compensate a lot, but I had to face how bad things have become when I tried for three days to write short directions to my home. In the end I had to cut and paste directions to the sports club near me instead, the words just would not come. Sending emails and texts, I have to save them, edit and re-edit until I can get them to make sense. However, some time ago I decided to try putting on paper the thoughts that come to me when I can do it - memories, ideas, stories etc. I just 'download' and don't worry about anyone reading them. So I get pages of these 'stream of consciousness' thoughts, but struggle to find a few pertinent sentences when it is required of me. I presume accessing different parts of the brain for the different tasks. It saps my confidence hugely to be unable to express my self adequately in words, spoken or written. Often what comes out is off the mark and leaves me looking foolish and possibly a bit weird! It is not something I see talked about much with ME, probably because it is so hard to verbalise if it is a problem. I am finding the cognitive problems as much if not more debilitating than the physical ones. Thank you for your fascinating insight into your progress with writing and how important it has been to you.