International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Write-up of the Invest in ME conference via The Canary

Discussion in 'General ME/CFS News' started by Bob, Jun 9, 2016.

  1. Bob

    Bob

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    Last edited: Jun 9, 2016
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  2. Bob

    Bob

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    Conrad Bower:

    "Freelance Writer living in Manchester with a background in pharmacological research, covering both academic and industrial positions. I have a keen interest in life the universe and everything, and would like to share everything I learn on the subject with you."

    http://www.thecanary.co/author/conrad/

    Twitter:
    https://www.twitter.com/conradbower1



     
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  3. A.B.

    A.B. Senior Member

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    Good article. Shame about the clown in the comments.

    Well at least he succeeded in making me laugh.
     
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  4. Bob

    Bob

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  5. Bob

    Bob

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  6. worldbackwards

    worldbackwards A unique snowflake

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    I do worry that the radical left don't end up on the winning side too often...:)
     
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  7. Sasha

    Sasha Fine, thank you

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    I don't think this is accurate, is it?

    I thought the study was fully funded and was going to have 20 PWME? (Or 25?)
     
  8. Sasha

    Sasha Fine, thank you

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    I see Janet Dafoe corrected it:

    I didn't realise that this was just pilot data! Pretty amazing for pilot data.

    Thanks, @Rose49.
     
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  9. BurnA

    BurnA Senior Member

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    Can anybody guess the scientific reason for using 43 controls ?
     
  10. Invisible Woman

    Invisible Woman Senior Member

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    ..er...the answer to life and the universe plus 1? ;)
     
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  11. A.B.

    A.B. Senior Member

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    Get a good idea of what "healthy" means.
     
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  12. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    It was pilot data. See my correction. Can we get them to correct their article? Lots of reaction to this mistake.
     
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  13. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Correct. 20. Samples are already drawn. Testing and analysis in progress!
     
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  14. ryan31337

    ryan31337 Senior Member

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    I was seriously fading by the end of the day but weren't the controls just the staff from Metabolon? Or did I imagine this bit!
     
  15. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    You are correct.
     
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  16. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    To see how much variation there might be in a healthy population, and to establish normative values for a healthy population.
     
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  17. BurnA

    BurnA Senior Member

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    Yes - this was the quickest way to get controls so they used the 43 staff of Metabolon
     
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  18. Bob

    Bob

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    Hi Janet, I've sent a message to the editor, with an explanation and a link to your comment on the Canary. I'll let you know when I get a response.
     
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  19. Kina

    Kina

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    That is what Ron Davis said -- basically need lots of data from healthy people to show up the abnormalities in patients.
     
  20. Forbin

    Forbin Senior Member

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    I'm becoming more and more suspicious that there is a connection between at least a subset of ME and chronic ulcerative colitis, the microbiome, and autoimmunity.

    My mother was diagnosed with chronic ulcerative colitis in her early 30's. Just prior to that, she went through a period in which she said that she felt like she was "living in a constant 'fog.'"

    Twenty years later, about three years after the post-viral onset of ME, I was also diagnosed with chronic ulcerative colitis - only to have that diagnosis reversed about a month later at a large university hospital. The second doctor said it was non-specific inflammation and "friable" tissue. He implied it was a transitory condition, but did not seem to grasp that I'd already had it for a couple of years.

    Is it possible, I wonder, for a strong viral immune response to somehow wipe out bacteria in the gut and upset the balance of the microbiome?
     
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