1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
The ePatient Revolution
Ryan Prior shares his experience and his thoughts from attending the Stanford Medicine X Conference as he contemplates the rising of the ePatient Revolution ...
Discuss the article on the Forums.

WPI UK XMRV testing/study

Discussion in 'XMRV Research and Replication Studies' started by JAS, Mar 5, 2010.

  1. Knackered

    Knackered Guest

    What do you mean? Licence plate gaff?
     
  2. Adam

    Adam *****

    Messages:
    495
    Likes:
    1
    Sheffield UK
    Knackered. Wesselly said in BMJ podcast and I am paraphrasing here:

    If someone gets knocked down by a car, we don't need to know the licence plate number to help rehabilitate him.

    And then went on to say we won't be testing people to find out what virus they had way back when - because it doesn't matter. Or he said it before the licence plate nonsense.

    The point being, he is intentionally ignoring the fact that the virus in question is a retrovirus, which does not hit and run, but as a retrovirolgist said, hits and hides.

    The guy is priceless. I mean, the average GP wouldn't have a clue. To them a virus is a virus. With slightly different names. Effecting different bodily systems. With varying levels of success. The only retrovirus they know of is HIV. But doubtless they wouldn't actually know it is a retrovirus.
     
  3. darkrobot

    darkrobot

    Messages:
    27
    Likes:
    2
    UK
    No problem Adam, fingers crossed you will make it into this round of testing and can get it done sooner rather than later. The Wessley stuff both depresses and enrages me no end.

    I'm also in Sheffield, small world huh?
     
  4. fingers

    fingers Senior Member

    Messages:
    210
    Likes:
    7
    SW Endland
    What Adam was referring to was the BMJ / Wessley podcast, when wanker Wes invited all ME sufferers to grab a car registration plate and wrap it around his neck.

    (sorry folks, hit the buttons again:oops:).

    Actually, Knack, his quote was something like "if ypu're run over by a car, we don't need to know the car reg. no. in order to treat your injuries" implying an analogy with ME and whatever infectious agent may have caused it.

    Of course, this is why nobody ever bothered to investigate AIDS, and just whacked a load of antivirals at it to see what happened.
     
  5. fingers

    fingers Senior Member

    Messages:
    210
    Likes:
    7
    SW Endland
    How did you know?
     
  6. bullybeef

    bullybeef Senior Member

    Messages:
    476
    Likes:
    44
    North West, England, UK
     
  7. darkrobot

    darkrobot

    Messages:
    27
    Likes:
    2
    UK
    Know what?

    By "fingers crossed you will make it", I meant "I hope you will make it", if that's what you're referring to...

    Damn this fogbrain.
     
  8. fingers

    fingers Senior Member

    Messages:
    210
    Likes:
    7
    SW Endland
     
  9. coxy

    coxy Senior Member

    Messages:
    174
    Likes:
    1
    no not that one. i thought a huge survey type poll was being set up for all XMRV positives? A few weeks ago there were threads running with ideas to add to the survey inc all types of symptoms etc, am i dreaming???????????
     
  10. oerganix

    oerganix Senior Member

    Messages:
    611
    Likes:
    5
    Now that would be a great photo-op, great publicity, wouldn't it? I'm wondering if it could be done on youtube, somehow, with various patients added in to make a great montage of folks with a license plate around the neck, saying XMRV POSITIVE. (Maybe "in UK" in small print beneath?)

    I agree about the alcohol. I'm a cheap drunk now, as it takes about half as much to get my "attitude adjustment" going. We have a wonderful rum here called Flor de Cana (Flower of Cane, as in, sugar cane) and a couple of decent beers: Victoria and Tonya.

    I'll pass, on the Greasy Chip Butty ....sounds horrid.

    Hugs for Adam.
     
  11. fingers

    fingers Senior Member

    Messages:
    210
    Likes:
    7
    SW Endland
    Anyone point us to this poll or where this was discussed, please?

    Thanks
    F
     
  12. Advocate

    Advocate Senior Member

    Messages:
    506
    Likes:
    14
    U.S.A.
    Hi coxy,

    A committee of four are still working on it, and have it almost ready to go, with its own website and terrific new survey software. The survey is long and difficult to take, however, so we are still working on simplifying it.

    Also, I am still trying to find a parent of an autistic child who is XMRV+, who will take a look at the survey and see if anything should be added. I have had one lead, but have not yet had a response. Do you know anyone--a parent of an autistic child who is XMRV positive?

    Advocate
     
  13. Adam

    Adam *****

    Messages:
    495
    Likes:
    1
    Sheffield UK
    Great posts guys. Song lyrics can be realy on the money as they say.

    This is by Joan Osborne (my favourite female solo artist of all time). The final verse goes:

    If I die before you do
    Believe me I'll be haunting you
    I'll come across you while sleep
    To drown you in a kiss so deep

    From her second album Righteous Love - the track is called Poison Apples (Hallelujah). Not sure exactly what it's about, but could be about AIDS.
     
  14. Adam

    Adam *****

    Messages:
    495
    Likes:
    1
    Sheffield UK
    Now that would be a great photo-op, great publicity, wouldn't it? I'm wondering if it could be done on youtube, somehow, with various patients added in to make a great montage of folks with a license plate around the neck, saying XMRV POSITIVE. (Maybe "in UK" in small print beneath?)

    :hug:

    Adam
     
  15. Dolphin

    Dolphin Senior Member

    Messages:
    6,872
    Likes:
    6,169
  16. Greggory Blundell

    Greggory Blundell *****

    Messages:
    109
    Likes:
    0
    New Jersey, USA
    We here in the US are routing for you! We are all in this together.

    Everything that happens in your country impacts those of us ill in the US and throughout North America. We share your excitement - and your trepidations. You are our brothers and sisters. Good luck with the testing!
     
  17. Greggory Blundell

    Greggory Blundell *****

    Messages:
    109
    Likes:
    0
    New Jersey, USA
    Of the top ten benefits of ME/CFS, cheap drunk ranks number four. I'd share the other nine, in sequence, but I cannot recall. But number four is dearest to my heart. Curiously, of the top ten drawbacks, cheap drunk stumbles in at number four.
     
  18. fds66

    fds66 Senior Member

    Messages:
    225
    Likes:
    2
    OK still no email here despite Dr Mikovits telling me I was in the study. Is anyone else waiting or should I be worried now?
     
  19. Knackered

    Knackered Guest

    I think a few more people are waiting too, I wouldn't be worried.
     
  20. willow

    willow Senior Member

    Messages:
    219
    Likes:
    6
    East Midlands
    Yip, I'm waiting.
     

See more popular forum discussions.

Share This Page