1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
Discuss the article on the Forums.

WPI Responds to UK PACE trials

Discussion in 'Latest ME/CFS Research' started by LaurelW, Mar 1, 2011.

  1. LaurelW

    LaurelW Senior Member

    Messages:
    552
    Likes:
    92
    Utah
  2. Enid

    Enid Senior Member

    Messages:
    3,309
    Likes:
    841
    UK
    What a marvellous read laurelW - many thanks. Well flawed , dubious motives, lovey doveing of the Psychos here getting us nowhere. Bless the WPI.
     
  3. CBS

    CBS Senior Member

    Messages:
    1,367
    Likes:
    271
    Western US
    Now really, how hard was that?

    I know it was hugely refreshing and there were no distractions from the primary point by going through the usual CAA contortions and qualifications.

    All I care about with regards to the PACE Trial is that CBT and GET is insanity in the face of infectious processes and limited physiological resources . END. OF. STORY!
     
  4. Dr. Yes

    Dr. Yes Shame on You

    Messages:
    867
    Likes:
    22
    +1


    And the WPI doesn't even have an advocacy arm yet!
     
  5. justy

    justy Senior Member

    Messages:
    2,687
    Likes:
    2,920
    U.K
    Music to my poor sad ears!
     
  6. Enid

    Enid Senior Member

    Messages:
    3,309
    Likes:
    841
    UK
    CBS - we know PACE is the pathetic arm of insanity here. And all our efforts - reason/science of ME must surely replace our medical establishment's "run out of ideas".
     
  7. maryb

    maryb iherb code TAK122

    Messages:
    2,896
    Likes:
    2,025
    UK
    Short and to the point= saved it to look at, it will help me calm down when I get annoyed at most UK things. How come this little company comes out of nowhere and within a year or so they feel like absolute saviours for those of us with ME/XMRV? I could just go on and on in hero worship about them...........
     
  8. Dreambirdie

    Dreambirdie work in progress

    Messages:
    5,112
    Likes:
    3,370
    N. California
    WPI does have a press room and a media coordinator... which they really can and should use more often.

    Telling the truth publicly IS advocacy.
     
  9. SilverbladeTE

    SilverbladeTE Senior Member

    Messages:
    2,144
    Likes:
    1,718
    Somewhere near Glasgow, Scotland
    tick tock...
    tick tock...
    the time on the clock
    is running out for the psycho-lock
    And soon, it will be them in the dock
    Or wearing a rear-buckled canvas frock ;)

    WPI are staying within the bounds, and not behaving like the hubristic 'tards on the other side of this issue.
    So I'll say it for the WPI folks and all of us who are thinking the same thing, shall I?

    ,!,,

    :D

    and three cheers for WPI! :)
     
  10. Angela Kennedy

    Angela Kennedy *****

    Messages:
    1,026
    Likes:
    154
    Essex, UK
  11. SOC

    SOC Senior Member

    Messages:
    5,362
    Likes:
    6,424
    USA
    :balloons: 3 cheers for the WPI! :balloons:
     
  12. Sasha

    Sasha Fine, thank you

    Messages:
    8,465
    Likes:
    7,565
    UK
    Yes, this is more like what we need.

    Has everybody seen Andrew's generous offer to match donations made to the WPI this March, up to $500 (see my sig)? I think the WPI deserve our money if we can spare any!
     
  13. garcia

    garcia Aristocrat Extraordinaire

    Messages:
    934
    Likes:
    103
    London, UK
    Note to Kim McCleary: This is how to do advocacy! Now go hang your head in shame.
     
  14. cigana

    cigana Senior Member

    Messages:
    620
    Likes:
    206
    UK
    What an illuminating contrast to the CAA's deflated, bewildering "response".

    Viva la WPI!
     
  15. Wonko

    Wonko Senior Member

    Messages:
    627
    Likes:
    104
    England
    I like it - good response
     
  16. TheMoonIsBlue

    TheMoonIsBlue Senior Member

    Messages:
    442
    Likes:
    54
    Me too-Good Response-Short-and right to the point.

    I'm sure there are quite a few people who would like to print it off and MAIL it to some Shrinks/Moronic doctors they've seen! I'd say go for it!
     
  17. alex3619

    alex3619 Senior Member

    Messages:
    7,501
    Likes:
    12,001
    Logan, Queensland, Australia
    The WPI response - short, focussed and accurate, touching the main points and emphasizing one important message. Just one more reason to support the WPI. Bye, Alex
     
  18. Sing

    Sing Senior Member

    Messages:
    1,311
    Likes:
    430
    New England
    I like your "ditty" very much. This must be saved for future uses!

    Thanks,

    Sing
     
  19. SilverbladeTE

    SilverbladeTE Senior Member

    Messages:
    2,144
    Likes:
    1,718
    Somewhere near Glasgow, Scotland
    Sing
    will do so, then ;)
     
  20. toddm1960

    toddm1960 Senior Member

    Messages:
    155
    Likes:
    3
    Rochester, New York
    Any more questions on why the CAA needs to go? Nuff said.............
     

See more popular forum discussions.

Share This Page