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WPI Letter to Dr McClure ****

Discussion in 'XMRV Research and Replication Studies' started by VillageLife, Apr 12, 2010.

  1. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    It's not difficult. All that needs to be done is to email an organisation or institution's Data and Information Office. All websites will have a page for this setting out the contact details.

    Sometimes an online form is provided, otherwise you can submit via email.

    Set out clearly the information you are requesting.
    Ask for an acknowledgement and any reference number asigned to the the request.

    You are not even required to ask "under the FOI Act", it will be treated as such, anyway. But I usually write "I request the following under the FOI Act."

    As for costs, a charge may be made for complex requests for large amounts of information. You would be advised in advance of any charge. I have never been charged.

    That's all there is to it. A response has to be provided, by law, within 20 working days.

    Suzy
     
  2. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    A few additional points:

    Multiple requests for the same information are counterproductive. One is sufficient.

    FOIs are compiled by staff with no specific interest in or knowledge about the issues for which the request revolves around. They merely procure and process the information and provide it to the enquirer.

    So it's not appropriate or productive to use them as vehicles for advocacy, expressing opinion or opening dialogue.

    ICL does not use an online form. The email address is foi@imperial.ac.uk


    Suzy
     
  3. usedtobeperkytina

    usedtobeperkytina Senior Member

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    Fatigue is a legitimate medical symptom. It is symptom associated with many legitimate illnesses, including influenza. It is recognized by doctors as commonly being indication of serious illness. So fatigue, the term, is ok. "Tired" on the other hand is not a good word, although a person who is not medically savvy might report their fatigue as being "tired all the time" or "exhausted," another word that indicates something normal, not illness.

    But fatigue is normally associated with some illness, biological or psychological. But even within fatigue, there should be another word. Some CFS specialists have said that fatigue as in fatigue with flu still does not describe the experience of someone with CFS. There just plain isn't a word to accurately describe what we have.

    Tina
     
  4. Gerwyn

    Gerwyn Guest

     
  5. Knackered

    Knackered Guest

    Snap, that's exactly how I feel Gerwyn. It's like always having the flu with varying intensities through out the day/week.

    Even on my good days I can still feel it, it's always there, it's just sometimes it's not as bad as it usually is.
     
  6. bullybeef

    bullybeef Senior Member

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    Someone's getting the picture on this blog: http://cfs-facts.blogspot.com/2010/04/journalist-needed-breaking-news.html

    .
     
  7. Cookie Monster

    Cookie Monster

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    Im curious to know if anyone has tried to email Dr McClure directly in order to discover her "official" reasons for her recent back-tracking on the ABC australia broadcast, rather than issuing a more professional retraction statement to make good her previous mistakes by using the same media as her earlier articles were published in (ie the BMJ) .

    I understand it may well have gotten nowhere, and i appreciate the WPI letter was released soon after but did anyone try to have a go at this? I know she responded before to people on the Plos One website re questions following her paper's conclusions which showed some inclination to engage in public discussion. Her recent admission of "a quick 2 weeks work" has publicly confirmed she wasnt ever going to be able to find XMRV as there wasnt time for employing the necessary amplification techniques as used in the Science paper.
    I dont think this kind of behaviour is acceptable - does anyone know if research scientists often retract statements dishonourably and to a different audience entirely as their original misstatements or is it common practice to be more open and honest? I do appreciate the world isnt perfect but isnt there some kind of scientific protocal to adhere to in these circumstances?
     
  8. ukxmrv

    ukxmrv Senior Member

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    Cookie Monster,

    I sent an email to Dr McC when the original paper was published. It was not rude or agressive. I didn't get a reply.
     
  9. Cookie Monster

    Cookie Monster

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    Thanks ukxmrv - sadly, i suspected this was gonna be the case, so many people on here are wonderfully quick to take the initiative on things like this, ive joined here late and im playing catchup alot of the time :eek:).

    What a self-important %^&* . Thats such a contrast to how the WPI behave.
     
  10. ukxmrv

    ukxmrv Senior Member

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    CM,

    I do know of approaches that were made to her that did receive a reponse and I used that avenue to communicate in the end. It may be that she was overwhlemed by ones from patients just after the study was published. I wasn't very impressed by the communications I did get through a third party in the end though. She came across as a NHS "Jobs worth"
     
  11. subtr4ct

    subtr4ct Senior Member

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    For us outside the UK, a "jobs worth" is a grouchy bureaucrat who does just enough to satisfy their work obligations. is that right?
     
  12. ukxmrv

    ukxmrv Senior Member

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    Thank you Subtr4st,

    Good explanation.

    I quite liked the Wiki one as well. The reason I am posting this is because I think that she may use these type of tactics to make excuses for not replying to or taking up the WPI offer

    =============================

    om Wikipedia, the free encyclopedia

    A jobsworth is a person who uses his or her job description in a deliberately un-cooperative way, or who seemingly delights in acting in an obstructive or unhelpful manner.

    "Jobsworth" is an almost exclusively British word deriving from the phrase "I can't do that, it's more than my job's worth". The Oxford English Dictionary describes it as British colloquial, and defines it as "A person in authority (esp. a minor official) who insists on adhering to rules and regulations or bureaucratic procedures even at the expense of common sense".[1] Jonathon Green similarly defines "jobsworth" as "a minor factotum whose only status comes from enforcing otherwise petty regulations".[2]

    Phrases such as "that's not my department", "that's not in my job description", and "that's not my job" roughly reflect the attitude of a person to whom the term applies.[dubious – discuss]

    One of the first recorded uses of the term appears to be in the 1965 Beatles movie Help! when the assistant scientist character Algernon (played by Roy Kinnear), exclaims "Well it's more than my job's worth to stop him when he's like this, he's out to rule the world... if he can get a government grant."

    Another early use was by UK folk-singer Jeremy Taylor in a song he wrote in the late 1960s:

    Jobsworth, Jobsworth, It's more than me job's worth,
    I don't care, rain or snow,
    whatever you want the answer's no,
    I can keep you waiting for hours in the queue,
    and if you don't like it you know what you can do.

    The term became widespread in vernacular English through its use in the popular 1970s BBC television programme That's Life! which featured Esther Rantzen covering various human interest and consumer topics. A "Jobsworth of the Week" commissionaire's hat was awarded each week to "a startling tale of going by the book".[3]

    The term remains in use, particularly in the UK, to characterise inflexible employees, petty rule-following and excessive administration.[4] It has largely supplanted the older term, "Little Hitler"
     
  13. oerganix

    oerganix Senior Member

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    I did the same, pointing out that her statement about the cohort being from an outbreak in the US was in error. She did not respond.
     
  14. Cookie Monster

    Cookie Monster

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    This lady heads up the most influential retrovirology lab in the uk - its very sad to think she doesnt want to contribute to scientific advances in her chosen field. Quite the opposite it seems.
     
  15. bullybeef

    bullybeef Senior Member

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  16. Adam

    Adam *****

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    This is ERV I presume? I don't patronise her filth. I hope others follow suit. No oxygen - no fire.
     
  17. fred

    fred The game is afoot

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    Hi Bully, there's a separate thread for this. Still no reply to various people's complaints, though.

    http://www.forums.aboutmecfs.org/sh...rch-March-2010-and-respond.&p=62898#post62898
     
  18. bullybeef

    bullybeef Senior Member

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    Thanks fred. I'll post this lastest titbit there.
     
  19. Knackered

    Knackered Guest

    Can we all please stop linking to erv's blog?
     
  20. bullybeef

    bullybeef Senior Member

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    Sorry, but this was news to me. I'm afraid I'm a little behind the times on here. Usually why I don't post that often.
     

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